Seraphina (3) with her little brother Max (10 months).
Both were diagnosed with LM as infants.
Seraphina underwent surgery at four months old because her LM was so severe.
Thankfully, both are thriving today :)
It’s
hard to believe it has been a little over three years since the word
laryngomalacia entered my vocabulary. Three years ago... my life was
upside down. My nights consisted of waking up to an apnea
monitor--alarming--telling me my infant was not breathing. My days were
filled with doctors appointments, scopes, heart scans and moments of
asking why did this happen to my baby?
I remember holding my --gasping
for air --baby while looking out the window... praying... please...
please give me the strength to get through this. Fast
forward two years and laryngomalacia made it’s presence yet again with
the birth of my third child, Max. I brought him to the ENT--knowing he
had LM-- hoping the ENT would tell me my motherly instinct was
wrong. I
could sit here and tell you how hard it all was. How my heart literally
ached, everyday. How scared I was. How I didn’t believe... it would
ever get better. I could tell you all that... but you already know. You
know because you are exactly where I was, three years ago... now my
heart aches for you. So I will tell you this... it does get better.
You are not alone in this journey.
CWL is here to help. Here to listen. Here to shed light in a journey of darkness.
My children are living proof that the good always follows the bad. Always.
Breathe Easy,
Stephanie Hueston.
CWL Founder & President
(c) Coping With Laryngomalacia, Inc. 2010-2013
