When Seraphina was born (six years ago) our family was thrown into a world of unknown. Up until her birth, we had no reason to think she would not be okay. So when our newborn was born-blue, breathing with a stridor and having significant retractions, we were shocked, lost and in need of support and education. It took five long weeks before we were able to finally get a diagnosis- laryngomalacia. This common, begin, condition was slowly killing our daughter and emergency airway surgery was needed. We spent the next two years living in and out of the hospital (New Jersey to Pennsylvania). Long nights in PICU, showering at the Ronald McDonald House and piles of medical bills became our new norm.
Throughout our journey with LM, I made a promise to myself- I would dedicate my life to helping others who have walked the same journey. I would do whatever I could to make sure no mother has to sit in ICU, watching her baby breathe and think, "I wish I had someone to talk to."
Coping With Laryngomalacia, Inc. is a 501 (c) 3 nonprofit organization, all donations- monetary or goods- are tax deducible. Everyday, CWL provides support, strength and education for families who are coping with airway defects such as LM because of it's generous donors. As an award winning, 100% volunteer organization, donors can feel confident in supporting such an important cause.
|Seraphina at age four months old recovering from airway surgery then at age six, thriving!|
Want to help?
First, share this post- your share may be the reason why a concerned mother makes an appointment with an Ear, Nose, Throat doctor to see why her baby is breathing so oddly.
Second, follow Coping With Laryngomalacia, Inc. on Facebook, Instagram and Pinterest so you can stay up to date with how your donation is making a difference.
Third, read this (http://tinyurl.com/gvmsrpw) blog post on different ways you can help- from making a secure, tax deductible donation online (http://tinyurl.com/phnrrpa) to starting a blanket drive within your community, this post will inspire you and your friends to make a difference.
Lastly, know the symptoms. The most common symptom of laryngomalacia is stridor- noisy breathing. Difficulty feeding, poor weight gain, reflux, apnea and blue spells are also signs the baby needs medical attention. Most symptoms are present at birth and worsen with the following weeks.
Thank you for taking the time to read this and supporting a cause so close to my heart. Together, we can move mountains.
~Stephanie Hueston, CWL Founder & President.