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Big Sister Educates The Public On LM

Rylan, age 13

 For her 4H presentation, Rylan choose to speak about laryngomalacia on her brother Trace's behalf. She won the gold medal and gets to move up to the California Southern Sectionals. Way to go Rylan, we are so very proud of you!

Pint-Sized Powerhouse Trace collecting blankets for Coping With LM, Inc.

Rylan, Gold Medal winner!

Because Of You

Dear Laryngomalacia,

Our journey began five years ago. Five years ago, I was angry at you. Very...intensely... angry. Life as I knew it was a distant memory and I blamed you. I fought you, I only saw the negative side of you, I let you destroy me.

The days turned into weeks and before I knew it, the weeks were turning into years.

Every time we would get home from another long hospital stay- because of you- I would stand in front of my mirror, unable to recognize the woman staring back at me. You were destroying me...and I was letting you.

Then I remembered advice my mother used tell me. She would say, “you always have a choice in life, Steph. Always.”

She was right. I could let you destroy me or I could let you empower me, the choice was there. The choice was mine to make.

So I dug deep, deeper than I had ever before and found my inner Supermom strength. The kind of strength you need to cope with a life threatening airway defect. I had it all along.

Before I knew it, my inner strength began strengthening others.

I was not alone, I was not alone.

There were other families-around the world- that you were trying to destroy.

So do you know what I did, Laryngomalacia? I shared with them,  the advice my mother told me...and now they are letting you empower them, not destroy them.  We are all connected, a virtual connection that spans from New Jersey to Australia. From The Netherlands to South Africa. We remain strong-together- when you try and make us weak.

So thank you Laryngomalacia for making me the person I needed to me. Because of you I wouldn’t be the mother, the wife, the person I am today. And you know what? I like...no, love... who I am today. I am strong. I am passionate. I am confident. I am enough.

My voice has been heard around the world,  because of you.

Written by: Stephanie Hueston

CWL Founder & President.