CWL wins title of MOST LOVED NONPROFIT by Hulafrog.com

Coping With LM, Inc. was honored with the title of MOST LOVED NONPROFIT of 2015

by Hulafrog.com* on February 25, 2015.

Thank you to all who voted! 

*Hulafrog.com is an email newsletter and website with the inside scoop on the best local events, 

 destinations & deals for kids and moms.

Hospital gowns are needed!

Photo credit: Lazy Girl Designs

We are  in GREAT need of infant-toddler size 

(boy/girl colors & prints) hospital gowns 

for our Breathe Easy Care Package Program.

These gowns will be included in our care packages and 

given to Pint-Sized Powerhouses' who are scheduled to have airway surgery.

All donations are appreciated and can be mailed to:

Coping With LM, Inc.

PO Box 313

Port Monmouth, NJ 07758

USA

*please include your name and address so we can properly thank you!*

*all donations are tax deductible and receipts will be given*

Malacia Mom Leah says:

"My son is getting surgery this month and we just received his care package. The thought of my son going into surgery is dreadful but the little surgical gown, Lu The Lamb and the beautiful blanket makes the thought so much more positive!"

 (5 Star Review from GreatNonprofits.com)

Get a FREE gown pattern here and here .

Airway Defects: From an EMT's Point of View

Today we have a guest blogger, Mr. Matthew Windram. Matt is an EMT and firefighter in New Jersey. Today he writes about Laryngomalacia from an EMT/first responders point of view... and what YOU need to know and do as a parent to make sure your baby gets the proper care...if something should go wrong.

"Laryngomalacia, or literally "soft larynx" is a very common condition of infancy and is the most common cause of inspiratory breathing noises in infants. Although well known to doctors, nurses, as well as parents of children who have the condition, it is not necessarily well known by members of the emergency services. Therefore you can be a resource to your local police officers, firefighters, and EMTs.

When to call 911 or go to the nearest Emergency Room:

-If the child stops breathing.
-If you witness the child turning blue (this is called Cyanosis)
-Episodes of Apnea, or interruptions in normal breathing
-Any episodes of respiratory distress characterized by the retraction, or sinking in of the chest and/or neck muscles for extended periods of time.

So what can you do?

Contact your local First Aid Squad or EMS providing agency and inform them that a member of your household has laryngomalacia. The squad or agency will then ensure that the EMTs in your area will be made aware of your residence and the possibility of laryngomalacia complications in their response area. Also, in the event of an emergency, be prepared to briefly inform the responding emergency personnel as to what laryngomalacia is, and its resulting complications. Sometimes the fire department or a police officer will arrive before an ambulance and will have only basic knowledge of first aid; so it's important for you to be well informed and ready to help them help you.

It's also important to be ready to explain the condition to the 911 dispatcher as well as if your child has a medical apnea monitor. By making the dispatcher aware of the condition and the monitor, they will be able to make the decision to send paramedics, who are better equipped and trained to deal with more advanced medical conditions.

While you are out with your child (or the child is at daycare ect) it's a good idea for the child to wear a medical alert bracelet in the event of an emergency.

Lieutenant Matthew Windram
Middletown Township Fire Department, Station #2

Chibebe Snuggle Pod Giveaway!

To celebrate 5 years of service and 5,000 Facebook members we are excited to announce our

 Chibebe Snuggle Pod Giveaway! 

Chibebe, Australia's original & leading Baby Beanbag brand, is transforming seating solutions for babies and children by delivering functional comfort and safety through unmatched quality and design.

Learn more about Chibebe Snuggle Pods here.

HOW TO ENTER THE GIVEAWAY:

• LIKE Coping With Laryngomalacia, Inc. on Facebook

• LIKE Chibebe Snuggle Pod on Facebook (and tell them WE SENT YOU!)

• COMMENT  on this blog post with your name, child's name, location, Email address and how would a Chibebe Snuggle Pod help your Pint-Sized Powerhouse?
  

TERMS AND CONDITIONS:

-winner will be randomly selected via Random.org on January 31, 2015.

-in order to be considered, all applicants must complete the three requirements for one entry.

-open to all infant airway defect families, worldwide.

-if winner is International: CWL is not responsible for any custom charges.

-winner will receive an unfilled Chibebe Snuggle Pod (color/print will differ from picture).

-the winner may purchase bean bag filler here. 

-the winner has three days to contact Coping With Laryngomalacia, Inc. with mailing address or another winner will be chosen. 

*THE GIVEAWAY IS CURRENTLY OPEN*

The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

Malacia MeetUp Hosts Needed!

New Jersey Malacia MeetUp, Oct 2014.

Coping With LM, Inc. is currently looking for Malacia MeetUp hosts for 2015. 

Malacia MeetUps are local meet-ups for families coping with infant airway defects. Malacia MeetUps take place nationally and internationally, all throughout the year. They are a great way to meet other local families who are walking the same journey as you.

Want to organize a Malacia MeetUp near you?

Contact us today!

Check our Calender of Events for upcoming Malacia MeetUps.

​

Looking Back At 2014

Take a look back at 2014 with us!

Thank you to all of our volunteers, donors and supporters!

You Are Invited To Our 3rd Annual Carft & Vendor Show!

RSVP here