I want to take a moment and thank everyone who participated in Paint
Your Nails Light Blue For Laryngomalacia on World Airway Defects Day
(July 10, 2016) this year. The support was overwhelming to say the
least. From Turkey to Australia to New Jersey, USA- we all stood
together-showing support, raising awareness and making a difference for
an airway defect many can not pronounce. As I put together this
highlight video, I reflected on my own journey with
#laryngomalacia. As
many of you know, six years ago, my daughter-Seraphina- was diagnosed
with life threatening laryngomalacia and needed an emergency
supraglottoplasty. I remember sitting in the doctor's office and asking
him if he had a support group-a contact-someone I could talk to. Someone
who knew exactly what I was going through. He was unable to offer me
anything. As I sat in PICU the night after Seraphina's surgery I made a
promise to myself, I would do whatever I could so no parent has to sit
in PICU, watching their child breathe and think, "I wish I had someone
to talk to." Coping With Laryngomalacia, Inc. is here for you, you are not alone.
Thank you, from my bottom of my heart for going #LightBlueForLM
- Stephanie Hueston, CWL Founder & President.
Want to help? Visit CopingWithLM.org
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