From the moment you find out your child has a defect you want to know, why?
To our knowledge, the medical community is still unable to tell mothers why their baby was born with an airway defect. Or why one child was born with it and doesn't require surgery and another child does.
One of our projects for 2013 is to conduct a public research survey to gather more information about the severity of LM, the speed of getting a proper dx. and other complications that can be related to LM, TM and/or BM.
How it works:
Every mother (who has birthed a LM, TM/BM baby) is invited to take the survey.
All answers are annoymous.
You will need to complete one complete (each survey has 2 parts) survey for EACH of your children that has LM.
The whole survey is broken into two parts.
First part: About the child
Second part: About the mother and her pregnancy
We will continue to collect data until June 2013.
We ask that you be as honest, upfront and clear as possible.
Once we gather and analyze all the data then release a report in the summer of 2013.
Survey CLOSED
Thank you!
-The CWL Team
CopingWithLM@yahoo.com
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