Tuesday, June 11, 2013

Breastfeeding Your Pint-Sized Powerhouse

Photo credit: Rambling Photography, LLC.

 The word sounds so glamorous while your pregnant... then four days post birth, 
it's 2am and your trying to get a screaming, hungry newborn to latch on. 
He latches on and the pain is so excruciating your pretty certain you just saw stars. 
As your milk fills his small belly, he begins to choke. 
His tiny arms are flailing and  he is gasping for air.  
You both sit there and cry, you wanted to breastfeed so badly. 

Does that story sound familiar? 
It does to me, I have been there... twice.
Breastfeeding is challenging enough then add an airway defect, 
it gets a whole lot of complicated, very quickly.
As the exhaustion builds and emotions rise, 
finding outside support and help is a feat within itself.

Once you have the proper education, help and support...
breastfeeding can be one of the best things to ever happen to 
you and your Pint-Sized Powerhouse!


First thing, take a nap.
Even LM Supermoms can not think clearly on two hours of sleep.
Let Dad or Grandma watch baby for a few hours while you regroup and rest. 

Feed yourself, well.
Recovering from birth and making milk are two very draining events on the body.
Give your body the right fuel while increasing your 
iron intake to help with postpartum bleeding. 
Every time your baby nurses, drink at least 8oz of water.  

Get comfortable.  
No one likes eating over the kitchen sink!
Find a relaxing, comfortable space to nurse. 
Some moms like nursing in rocking chairs while others enjoy nursing in bed.

Have a small box next to you with all your must-need items:
cell phone
paper and pen
chap stick
nipple cream
burp rag
t.v. remote control
breastfeeding support pillow
heating pad for post-birth cramping 

Play relaxing music and put your feet up. 

Ask for help.
The "raising a baby takes a village" saying didn't come out of nowhere. 
Ask close family and friends to care for older children, pets and the house. 
If family and friends suggest helping by feeding the baby, gently remind them
you and your baby are working, very hard to establish a successful breastfeeding relationship right now. 
There will be plenty of time for play-dates with Grandma in the future! 

Find a good ENT.
You will have a very hard time continuing your breastfeeding relationship
 unless the LM is treated properly.  

Rule out other issues.
Rule out tongue tie, lip tie, forceful letdown and other causes of breastfeeding trouble. 

Get a good breast pump.
Even if you plan on exclusively nursing, you still need a good pump. 

Reasons to pump:
to help with mastitis/plugged duct
to donate milk/build freezer stash
to give yourself a break

Not all pumps are created equal, do your research
While a double electric breast pump may work well from many women,
 some respond better to a single manual pump.

If anyone tells you, 
"you only pumped 2oz the past two sessions, you are not making enough for your baby."  
let them know they need to brush up on their breastfeeding education.

CWL Founder & President Stephanie Hueston's Pint-Sized Powerhouse Max, still nursing at 14 months old.

Formula is not bad. 
Formula has saved many babies lives over the years.
In times of need, it is a wonderful thing.
When used correctly,
 formula can help many breastfeeding moms overcome their challenges.

Supplementing with formula.
Formula should only be given after the baby nurses on 
each breast and is still showing hunger cues.
Breastfeeding is all supply and demand. 
If your baby does not demand more supply, your body will not make more supply. 

Thickening breast milk without formula.
There are other options to thicken breast milk without using formula.

Position is everything.
From relieving a plugged duct to correcting a poor latch
Nursing positions can make or break a breastfeeding relationship.
As your baby gets older, he will create new nursing postions--oh the joys of nursing a toddler!
Until then, you are responsible for finding what works best for YOU and your baby. 
Many LM, TM, BM babies do well with nursing upright

Dealing with negative feedback.
There will always be someone who has to rain on your parade.
remember, it is their problem--not yours.
You are doing the very best thing you can for your child.
You are providing him with amazing nourishment, security and creating a bond unlike any other.
If someone has a problem with your boobs feeding your child... 
tell them to go walk around Victoria's Secret.  ;)

Low/no milk supply options.
If you are still having low or no milk supply after working with your Lactation Consultant, using human milk donations may be a good option for your baby. 
are both great resources.
Also, if you have a close friend/family member who is nursing...
do not be scared to ask her for milk..99% of the time she will be honored to donate.

It's not always going to be this hard.
From porn-star sized breasts to bleeding nipples the idea of being at the park and whipping out your breast to feed your baby may seem like a lifetime away. 
You will get there.  
Your breasts will return to a more non porn-star size in about six weeks. 
Your nipples will heal as your baby (and you) become better with latching. 
Your baby will not always nurse for 45 minutes every 3 hours and as your baby learns how to crawl and play...you will have to remind him to take a break and nurse. 
Most importantly, the choking from the laryngomalacia 
will subside as your baby gets older. 

More resources:
The Leaky Boob

Breast milk can also be fed through a feeding tube and by a SNS .

CWL Founder & President Stephanie Hueston can be contacted 
24 hours a day, 7 days a week. 

this post is based on experience only. 
it is not intended to override or replace any doctors medical advice. 
should you have a serious problem breastfeeding or 
your child is having trouble breathing please contact your doctor immediately.

© Coping With Laryngomalacia, Inc. All rights reserved.

Monday, June 3, 2013

Getting Answers: 2013 Research Project- Data Summary

Getting Answers: 2013 Research Project

Coping With Laryngomalacia, Inc.
a 501 (c ) 3 nonprofit organization.

At the start of the new year, CWL launched its first worldwide research project. The project consisted of two separate surveys (one regarding the child and one regarding the pregnancy of the child). 
The surveys were open to all LM, T M, BM families, around the world. 112 people from 34 US states, Canada, Sweden, France, Scotland, Australia, Liverpool, Norwich, England and Ireland all participated in the surveys. Participants had the choice to “skip” all questions and for some questions, could choose more than one response. No one was compensated for their time or responses. All responses were anonymous to CWL.

The Results

Part 1: The Pregnancy

1.The top 3 states/countries with LM, T M, BM mothers and children were:
  • California, USA
  • New York, USA
  • Canada

2. Age at which the mother conceived the LM, T M, BM child:
39% said 25-30 years old

3. Prescription medication use during the pregnancy:
Out of 80 responses, an overwhelming 55 said yes they took medication while pregnant.
The most used medication was an antibiotic followed by an antidepressant.

4. Family history of LM, T M or BM:
88% said there was no family history.

5. Use of hair dye during the pregnancy:
55% said yes, they did use hair dye during the pregnancy.

6. Prenatal vitamin use during pregnancy:
90% said yes, they took their prenatal vitamin during the pregnancy.

7. Did the mother suffer from severe morning sickness (hyperemesis gravidarum):
88% said no, they did not suffer from HG.

8. Participants were asked to rate their pregnancy:
53% said they would rate their pregnancy as low risk.

9. Chemical and environmental contaminant exposure during pregnancy:
48% said they were exposed to smoke followed by 28% said  flu and 26% said mold.

10. Weeks gestation  the baby was born at:
63% said 39-41 weeks (full term).

Part 2: The Child

1.The top 3 states/countries with LM, T M, BM mothers and children were:
  • California, USA
  • New York, USA
  • Canada

2. Gender of baby:
71% said boy.

3. Age at which the baby started showing symptoms:
48% said symptoms were present at birth followed by 39% said within the first two weeks after birth. All participants noted symptoms.

4. Age at diagnosis:
79% said at 0-3 months followed by 16% said at 3-6 months.

5. When diagnosed, what category was the LM, T M , BM:
please note, parents of mild cases usually do not seek out support/education so they would not be aware of this survey.
53% said moderate followed by 33% said severe (needing surgery).

6.Need for reflux medication:
88% said yes, their child needed reflux medication.

7. In addition to LM, TM and BM, other diagnosis the child has:
please note, participants were allowed to choose more than one response.
The top 3 are:
  • 78% Gastro: reflux, ulcers, chronic swelling of the airway
  • 52% Feeding Problems: Failure to Thrive, need for feeding tube or feeding therapy.
  • 29% Other

8. Age the child needed surgery:
80% said within the first 6 months of life.

9. The need for more than one surgery (supraglottoplasty):
73% said no, there was no need for a second surgery.

10.  Stridor improvement:
42% said the stridor improved after surgery followed by 36% said once reflux (GERD) was under control.

After reading the combined data from each survey it is apparent no family history is needed to have a child with either defect, medication use during pregnancy may suggest a link to all three defects and most of the babies are born at full term. Babies seem to all show symptoms at birth or within the first two weeks of life. The survey suggests LM, TM, BM affects more boys than girls and many moderate-severe babies require the use of prescription reflux medication. If the baby requires surgery, it is usually performed within the first six months of life and it is very rare a second supraglottoplasty is needed.The actual number of severe babies to mild babies is still unknown since many parents of mild babies do not seek out support.