Tuesday, January 16, 2018

What To Pack When Your Baby Goes To The Hospital

As many special needs parents know, hospital stays can happen in the blink of an eye or they can be booked for months in advance. Regardless of the urgency of the stay, it's a good idea to have a detailed list of items to pack. From obvious items like a toothbrush and iPhone charger to some not so obvious, an electric hot water settle to make coffee/tea with. 

1. Favorite blanket/lovie
2. Extra pacifiers 
3. Bottles and bottle brush
4. Baby formula
5. Snap or two piece pajamas
6. Socks
7. Small toys and books
8. Small crafts for older children
9. DVDs
10. Bouncy seat
11. Baby carrier
12. White noise sound machine
13. Breast pump and supplies
14. List of current medications
15. Fingernail clippers
16. Baby oil / coconut oil to help remove bandage glue
17. Soap, towel and comb
18. Unscented baby lotion
19. #LuTheLamb
20. Baby food and nonperishable snacks, including allergy friendly options

1. iPhone, iPad and laptop chargers
2. Socks and slippers
3. Lip balm
4. Pillow and blanket
5. Cash for vending machine
6. Book
7. DVDs
8. Adult coloring book
9. Reusable coffee/tea cup
10. Advil / Tylenol
11. Women's feminine products
12. Extra clothing including a sweatshirt and pajamas
13. Small dish soap and sponge
14. Notebook and pen
15. Hand sanitizer and sanitizing wipes
16. Shampoo, conditioner, body wash, wash cloth and a bath towel
17. Hair brush, hair ties and make-up
18. Heating pad
19. Batteries
20. Essential oils and diffuser
21. Current project: crochet, knitting etc.
22. Ear plugs and a night mask
23. Vitamins and prescription medication
24. Nonperishable snacks including allergy friendly options

Tuesday, January 9, 2018

A Year In Review: 2017

A Year In Review:
What a wonderful year it has been at Coping With LM! 

Through our Breathe Easy Care Package Program, 151 babies with life threatening laryngomalacia received a care package for their upcoming procedures; making 2017 CWL's most impactful year yet! 

We gave three $100.00 Pint-Sized Powerhouse Grants to three very deserving warriors. 

Thanks to our friends at Chibebe Snuggle Pod USA, 12 babies with laryngomalacia received Snuggle Pods, free of charge and two babies in Australia received Snuggle Pods. 

We continued our partnership with Gelmix Thickener, launched our Amazon Wishlist and joined eBay For Charity. We also continued our fundraising efforts with Amazon Smile, Bravelets and Jamberry.

We graciously accepted donations from Heaven's Healing Hats, West Chester University Honors College, 02 Kid Lids, Fairlington United Methodist Women's Church, Benevity, Wells Fargo, Virgin Pulse Inc:, Network For Good, LuLaRoe, The Cordish Family Foundation, Fidelity Charitable Fund, Gracie's Gowns, Eliana's Collection Nail Polish, 
and The #DoingItForKeiley Project.

On Sunday, June 11th we created a Wave Of Light in memory of Alexander Joseph Andrade Jorgenson who passed away on May 31, 2017 from respiratory failure (Cardiac Arrest) due to complications of tracheomalacia.  #CWLLight4Alex 

We were humbled by the outpouring support from our donors. Many of you hosted Care Package Drives; your support and passion for our cause was not only heartwarming, but greatly appreciated. 

On July 10, 2017 we all stood together and painted our nails light blue for LM.

On August 6, 2017 CWL Founder & President Stephanie Hueston met with other local families for a New Jersey Malacia Meet-Up.

Also in August, we welcomed volunteer Tarah  Barreras to the CWL Team! 
Tarah's commitment and passion for CWL has been amazing; we are so happy to have her! 

CWL Founder & President Stephanie Hueston shared why CWL asks for handmade blankets, 10 reasons why you shouldn't use a store bought monitor on a baby with LMand how friends can help someone who is coping with laryngomalacia on the Coping With LM Blog.

We witnessed how in times of crisis
families rally together and pour their love into each other. 

CWL's mission of providing support and strength expanded in 2017 with the launch of the World Leader Program. The purpose of the World Leader Program is so newly diagnosed families can connect with "seasoned" parents in their area. 

#LuTheLamb traveled the world in 2017, 

helping his Pint-Sized Powerhouses' breathe easy! 
He also attended the Solar Eclipse! 

With your support, we raised $1,350.54 with our t-shirt fundraiser's 
and over $1,200.00 thanks to your Facebook Fundraisers! 

Finally, we humbly received the 2017 Top-Rated Nonprofit Award from GreatNonprofits and launched our first e-Book, 'When It's More Than Noisy Breathing' thanks to the help and support from Dr. Prasad John Thottam D.O., FAAP Director of Beaumont Children's Hospital Pediatric Aerodigestive Center and Dr. Suzanne Forman D.O. Otolaryngologist & Plastic Surgeon.

As 2017 comes to a close, I can rest peacefully knowing that with your support Coping With Laryngomalacia, Inc. and #LuTheLamb have fulfilled their missions. Families around the world are supported, strengthened and educated.  Thank you for giving, volunteering, supporting and loving CWL... it is because of YOU that we were able to accomplish what we have in 2017. 

May you always stay brave,
-Stephanie Hueston, CWL Founder & President