Tuesday, December 29, 2015

Your Baby Has Laryngomalacia, Now What?

Has your baby just been diagnosed with laryngomalacia? Welcome, glad you found us. You are probably feeling very overwhelmed, confused and scared. Not really sure how to even pronounce laryngomalacia let alone know where to begin. The doctor may have told you your baby has mild-moderate laryngomalacia and you are now on the "watch & wait" course of treatment. He may have ordered further testing such as a chest and neck X-ray, a sleep study or maybe even prescribed acid reflux medication. Your baby may be having difficulty feeding, every ounce is a battle. You are unable to find good information how to properly nurse a baby with an airway defect. Maybe your baby has been turning blue and stops breathing, you are now headed into the hospital for surgery. You are exhausted and in desperate need of support, strength and education. You have come to the right place, we will be here for you every step breath of the way. 
~Stephanie Hueston, CWL Founder & President CopingWithLM@yahoo.com, Contributor to The Mighty.

What is laryngomalacia?
Laryngomalacia, or “floppy voice box,” is an infantile condition where the larynx (voice box) does not fully develop which causes the immature cartilage of the upper larynx to collapse upon inhalation. LM results in partial airway obstruction, typically causing a specific high-pitched squeaking noise upon inhalation, which is referred to as stridor. This ultimately causes an airway obstruction which is the reason for the cyanosis.The part above the vocal cords called the supraglottic larynx is tightly curled, with a short band holding the epiglottis, cartilage shield in the front, tightly to the mobile cartilage in the back of the larynx, or the arytenoids. These bands are known as the aryepiglottic folds which create the precise movement that opens and closes the vocal cords for phonation, or sound. The shortened aryepiglottic folds cause the epiglottis to be curled on itself. This is known as "omega shaped" epiglottis in laryngomalacia. Some infants have feeding difficulties related to this problem. Rarely, children will have significant life threatening airway obstruction. The vast majority, however, will only have stridor without other more serious symptoms.

Time is the most common treatment in more than 99% of infant cases. In more severe cases, surgery may be necessary. A supraglottoplasty involves cutting the aryepiglottic folds to let the supraglottic airway spring open. Treatment of gastroesophageal reflux disease, or GERD, can also help in the treatment of laryngomalacia. GERD treatment is effective because gastric contents can cause the back part of the larynx to swell and collapse even further into the airway. In some very rare cases, a temporary tracheostomy may be necessary to maintain an airway to give the child time to grow.* Learn more here.



I am looking for a recommendation for a good Ear, Nose, Throat Doctor. 
Do you have any?
Yes, you can view our top-rated ENT's here.

My baby has his/her first appointment with the Ear, Nose, Throat doctor in the near future. What questions should I ask?
We suggest printing out our free What To Ask Your ENT resource page, found here.

What are some common tests and procedures prescribed for babies with moderate to severe laryngomalacia?
From bronchoscope to a sleep study. We have compiled a list of common tests and procedures so you can understand and better educated yourself along your journey, found here.






When is surgery needed? 
Surgery is the treatment of choice if your child's condition is severe.
Symptoms that signal the need for surgery include:
  •     Life-threatening apneas (stoppages of breathing)
  •     Significant blue spells
  •     Failure to gain weight with feeding
  •     Significant chest and neck retractions
  •     Need for extra oxygen to breathe
  • Heart or lung issues related to your child's inability to get enough oxygen 
Do all babies with Laryngomalacia need surgery?
No, only 5% of all babies diagnosed with laryngomalacia will need surgery. Surgery should only be preformed to help treat life threatening LM. 

My baby needs surgery, can you help?
We would love to send your baby a care package. You can apply here.  



Are your programs available worldwide?
Yes, our programs are always free of charge and available worldwide. You can apply for our programs here.

I am looking for an organic thickener to thicken my baby's bottles. 
Do you recommend one?
Before changing your baby's feeding routine, please consult his/her doctor. We do, however, recommend Gelmix Thickener.  



My baby is having difficulty feeding. Do you have any resources that can help?
You can find more support, strength and education on laryngomalacia related feeding difficulties here for breastfeeding, here for bottle and formula feeding, here for reflux and here for tube feeding

My baby has severe laryngomalacia and needs a tracheotomy tube. Do you have any additional resources? 
Although rare, some  babies will need a tracheotomy tube (trach) to help him/her breathe. ​We have partnered with Moms of Trach Babies to help provide you with continued support, strength and education.
My baby needs to sleep on an incline, do you recommend any safe sleeping products to help?
Before changing your baby's sleeping routine please consult his/her doctor. We do, however, recommend the Fisher-Price Rock N Play Sleeper  and the Chibebe Snuggle Pod (Australia families only). 

What are some natural remedies I can try to help my baby breathe easier?
Before changing your baby's treatment plan please consult his/her doctor. We do, however, recommend using nasal saline spray, a cool mist humidifier (like this one) and sleeping on an incline.  

I am interested in wearing my baby. Which carrier do you recommend? 
Our Founder & President Stephanie Hueston is an Ergobaby affiliate and has been babywearing her laryngomalacia babies for 5+ years. She would love to talk to you about the benefits of babywearing! 




I am exhausted from not sleeping. Should I let my baby Cry-It-Out?
We are strongly against the Cry-It-Out Method of sleep training. Crying infants experience an increase in heart rate, body temperature and blood pressure. Crying also swells the airway, making the symptoms of LM worse. We strongly support the Wait-It-Out Method of sleep learning. You can read more about it here.  

Every time I bring my baby out in public, people make comments about my baby's noisy breathing (stridor). What should I do?
Although laryngomalacia is considered "common" most people have never heard of it. They hear the noisy breathing (stridor) and assume your baby is fighting a contagious illness. We understand how frustrating this can be but we encourage you to take this opportunity to educate the public on what laryngomalacia is. You may pass out our informative brochure (found here), refer them to our website (CopingWithLM.org) or show them this video.  
We also recommend our medical alert car seat/stroller sign, found here
 


My baby has severe laryngomalacia, should I contact my local first aid squad and let them know? 
Yes, contact your local First Aid Squad or EMS providing agency and inform them that a member of your household has laryngomalacia. The squad or agency will then ensure that the EMTs in your area will be made aware of your residence and the possibility of laryngomalacia complications in their response area. Also, in the event of an emergency, be prepared to briefly inform the responding emergency personnel as to what laryngomalacia is, and its resulting complications. Sometimes the fire department or a police officer will arrive before an ambulance and will have only basic knowledge of first aid; so it's important for you to be well informed and ready to help them help you. You can read more about emergency preparedness here.

Is there a laryngomalacia awareness day? 
Yes! #AirwayDefectsDay is July 10, 2016. We encourage all of our supporters to paint their nails light blue for laryngomalacia!



Is Coping With Laryngomalacia, Inc. on social media?
You can follow us on Facebook, Instagram and Pinterest. Be sure to use #LuTheLamb in all your social media posts!  


I would like to host a Malacia MeetUp, how do I begin?
That sounds great! Please Email us at  CopingWithLM@yahoo.com to learn more about hosting a Malacia MeetUp near you.




I want to connect with other parents but I do not want my posts to show up in my friends news feed. Is there an online support group just for parents?
Yes, you may join our closed support group here

I would like to share my child's journey with others. Are you accepting blog submissions?
Yes, we are always accepting blog submissions for our blog. We ask that submissions be kept to a 850 word maximum, are fully edited and keep with #TheGoodAlwaysFollowsTheBad tone. Pictures are welcome! You may submit your story to CopingWithLM@yahoo.com please include your name, address and a 3-5 sentence bio about yourself. 

Malacia Mom Megan with her son Evan.

Coping With Laryngomalacia, Inc. has positively impacted my life. How can I give back?

We are happy to hear we helped you cope with laryngomalacia! There are a handful of ways you can give back, each one is always needed and greatly appreciated!

  • You can make a tax deductible donation here
  • Share your experience with CWL on our Great Nonprofits page, found here.
  • Donate items to our Breathe Easy Care Package Program, wishlist found here.










Monday, December 28, 2015

#LuTheLamb Giveaway: And the winner is...

And the winner is, entry #6!
 
Congrats Nicole, check your Email for more details on how to claim your prize.
 
Thanks to everyone who entered, Happy New Year!

Sunday, December 20, 2015

The Good Will Come

Almost six years ago I was forcefully introduced to the world of life threatening laryngomalacia. Since only 5% of babies who are diagnosed with laryngomalacia, will be diagnosed with life threatening laryngomalacia, I had a very hard time finding outside support and information. I was alone and lost in my journey. Unable to connect with other parents, unable to see that the good really does follow the bad.
 
pictured: Seraphina, age 5, putting together care packages for 
her fellow laryngomalacia friends.
 

Somehow, life went on... in between all the hospital stays, airway surgery, oxygen tanks and those long, long nights I slept with my hand on her chest- feeling every breath. Those nights turned into days, then into weeks then months and before I knew it, I was singing Happy Birthday to my baby- on her 5th birthday. She survived. I survived. We survived.

I am now at a place in my journey where I can see the good. I witness the good, everyday. No longer is my baby hooked to an apnea monitor, no longer does she turn blue, no longer does she choke while feeding.

Our days are filled with cookie baking, reading Little House On The Prairie and pottery class.

If you are struggling to see the good, please know it WILL come. The sun will shine again.

Coping With Laryngomalacia, Inc. is here for you, every step of the way.

Stay strong and breathe easy,
Stephanie Hueston
CWL Founder & President
CopingWithLM.org

Wednesday, December 16, 2015

Remember You Are Never Alone


"When you hear the noisy breathing, remember we heard that too, When your concerns fall upon deaf doctors ears, remember we felt that too, When you are told your Child has laryngomalacia, Remember you are never alone. We are in this struggle together. When you are scared because your child can't get their breath, We have been there too. The beeps hounding you from the monitors from the fragile baby you want to protect. We can cope if we all cope together. We can do this if they can do this. Can't we? The moment they tell you your baby needs surgery, That you must hand them over and trust them with something, someone so precious. The fear, You are not alone, we felt that too."-Malacia Mom Noami

Monday, December 14, 2015

#LuTheLamb Holiday Giveaway! (CLOSED)



Happy Holidays from everyone at 
Coping With Laryngomalacia, Inc.!

We are so excited to be offering a 
giveaway to our amazing families!

Gift bag includes:
 #LuTheLamb stuffed animal
 Medical alert car seat/stroller sign
10 brochures 
Sample pack of Gelmix Thickener
Handmade zipper pouch from SewLoved on Etsy

*over a $50 value!*

HOW TO ENTER:
THIS GIVEAWAY IS NOW CLOSED!
  • Once all four tasks are completed, leave a comment on this blog post with your name and a valid Email address.

Rules:
One random winner will be selected and Emailed on 12/23/15.
This giveaway is valid worldwide.
Shipping is paid for by Coping With Laryngomalacia, Inc.
Coping With Laryngomalacia, Inc. is not responsible for International custom fees. 
This giveaway is not sponsored by SewLoved on Etsy.
This giveaway is not sponsored by Tags 4 Tots on Etsy.
This giveaway is not sponsored by Facebook or Instagram. 
This giveaway is not sponsored by GreatNonprofits.com
 


Tuesday, December 1, 2015

#GivingTuesday Is Here!

 Support Coping With Laryngomalacia, Inc. by shopping with Amazon Smile or by making a donation directly on our website:

thank you so much for your support!

Tuesday, November 10, 2015

Mark Your Calender, #GivingTuesday is 12/1/15!

Your $25.00 donation will send a care package to a laryngomalacia baby in ICU recovering from airway surgery, together we can make a difference!
DONATE NOW.

Thursday, November 5, 2015

Jamberry Nails Online Fundraiser, happening now!

Each sheet of nail wraps gives you 2 manis and 2 pedis, plus leftovers.
Our current special is Buy 3, Get 1 FREE! (Regular price is $15 per sheet - licensed wraps are $17.50 and excluded from the special)

Shop NOW.
RSVP via Facebook

Fundraiser ends on November 28, 2015.

Tuesday, October 13, 2015

How Can I Help?

Coping With Laryngomalacia, Inc. is a registered 501 (c) 3 nonprofit organization that receives no government funding or grants. Coping With LM, Inc. is able to fulfill it's mission thanks to it's generous donors and volunteers who donate their precious time and talents, daily.


Q: How do I make a monetary donation online?
A: You may donate securely (here) on our website via PayPal.
      a $25 donation will send one care package to a baby in ICU recovering from airway surgery.

Q: Where do I send a donation by mail?
A: You can make all checks payable to:
Coping With LM, Inc.
PO Box 313 Port Monmouth, NJ 07758 USA



 
Q: Is my donation tax deductible? 
A: Yes! You will receive a receipt (for personal and tax purposes) and thank you card in the mail 7-10 days after your donation in received.

Q: I would like to donate to your Breathe Easy Care Package Program, what items are you in need of?
A: We are always in need of the following:
  • handmade baby blankets
    - made from new fleece, soft yarn or cotton.
    -all colors and prints are accepted.
    -size 36in x 36in is preferred.
  • handmade hats
    -made from new fleece, soft yarn or cotton.
    -size 3 months through 2T.
  • handmade hospital gowns
    -made from new cotton.
    -all colors and prints are accepted.
    -sizes newborn through 2T.
  • handmade (or store bought) baby lovies and rattles (small item for baby to hold/play with while in the hospital)
    -made from new soft yarn.
    -if store bought, item must still have tags on it.
    -all colors are accepted.
  • reading books, coloring books, crayons and stickers (for children 2 years+ who are in the hospital)
    -items must be new and unused.
    -boy and girl colors/characters accepted. 
  • go here for free patterns and ideas. 
  • all donations can be mailed to: Coping With LM, Inc. PO Box 313 Port Monmouth, NJ 07758 USA
Q: I would like to volunteer my time and talents, who should I contact?
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about our current volunteer opportunities.

Q: Does Coping With LM, Inc. have any ongoing fundraisers? 
A: Current ongoing fundraisers include:

Q: I would like to host a Malacia MeetUp, how do I begin?
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about hosting a Malacia MeetUp near you.

Q: I am interested in learning more about fundraising for Coping With LM, Inc. Who should I contact?
A: Please contact Stormye at StormyeW@gmail.com to learn more about organizing a local event near you. Please contact Stephanie at CopingWithLM@yahoo.com to learn more about online fundraising (Etsy shop owners, Direct Sales Reps, ect.)  and New Jersey events.


Q: I/my child has been greatly supported and strengthen by Coping With LM, Inc. Where can I share my/our story?
A: We encourage all of our families, donors and volunteers to share their experiences and stories on our Great Nonprofits page, found here.

Q: Do you have an awareness day for airway defects?
A: Yes! #AirwayDefectsDay is July 10, 2016. We encourage all of our supporters to paint their nails light blue for laryngomalacia!





Wednesday, May 20, 2015

CWL HONORED AS TOP-RATED NONPROFIT

For Immediate Release:
greatpnp15.png

Coping With Laryngomalacia, Inc. HONORED AS 2015 TOP-RATED NONPROFIT
GreatNonprofits.org Award is based on Positive Online Reviews

Port Monmouth, New Jersey (May 20, 2015) –Coping With Laryngomalacia, Inc. announced today that it has been honored with a prestigious 2015 Top-Rated Award by GreatNonprofits, the leading provider of user reviews about nonprofit organizations.
“We are excited to be named a Top-Rated 2015 Nonprofit,” says Stephanie Hueston, CWL Founder & President. "We are proud of our accomplishments this year including,  the addition of macrame bracelets to our care packages. Each bracelet is hand-stamped with the words “Just Breathe” on them. We hope our mothers will wear the bracelet on their child’s surgery day as a symbol of strength and courage, a reminder that they will get through this- all they have to do is just breathe.”
The Top-Rated Nonprofit award was based on the large number of positive reviews that Coping With Laryngomalacia, Inc. received – reviews written by volunteers, donors and clients. People posted their personal experience with the nonprofit. For example, one person wrote, "I found this site trying to find information about laryngomalacia as I had heard about and suspected my daughter had it. Prior to her diagnosis, the site was helpful is helping me understand the diagnosis process and what types of questions to ask the doctors. After her diagnosis, it has been a source of support and information. We are very appreciative of the service of this organization, as well as the effort they are making in helping to bring awareness to laryngomalacia!”

While the Top-Rated Awards run through the end of October, Coping With Laryngomalacia, Inc. was part of the inaugural group to qualify for the year. In addition, they been added to GreatNonprofits #GivingTuesday Guide—an interactive guide of the top nonprofits throughout the year. Look for this near the holidays.

“Savvy donors want to see the impact of their donations more than ever,” said Perla Ni, CEO of GreatNonprofits, “People with direct experience with Coping With Laryngomalacia, Inc. have voted that the organization is making a real difference.”

Being on the Top-Rated list gives donors and volunteers more confidence that this is a credible organization. The reviews by volunteers, clients and other donors show the on-the-ground results of this nonprofit. This award is a form of recognition by the community.


About Coping With Laryngomalacia, Inc.
Coping With Laryngomalacia, Inc. (an all volunteer organization) is the first 501 (c) 3 nonprofit organization in the USA and in the world that  provides support, strength and education for families coping with infant airway defects.
Visit CopingWithLM.org for more information.

About GreatNonprofits
GreatNonprofits is the leading site for donors and volunteers to find reviews and ratings of nonprofits. Reviews on the site influence 30 million donation decisions a year. Visit www.greatnonprofits.org for more information.

Media Contact
CWL Founder & President, Stephanie Hueston. CopingWithLM@yahoo.com

Wednesday, April 29, 2015

Sponsor A Malacia Mom!


DONATE NOW:
http://www.copingwithlm.org/#!donate/crzh

Saturday, April 11, 2015

Big Sister Educates The Public On LM

Rylan, age 13


 For her 4H presentation, Rylan choose to speak about laryngomalacia on her brother Trace's behalf. She won the gold medal and gets to move up to the California Southern Sectionals. Way to go Rylan, we are so very proud of you!


Pint-Sized Powerhouse Trace collecting blankets for Coping With LM, Inc.
Rylan, Gold Medal winner!

Monday, April 6, 2015

Because Of You

Dear Laryngomalacia,
Our journey began five years ago. Five years ago, I was angry at you. Very...intensely... angry. Life as I knew it was a distant memory and I blamed you. I fought you, I only saw the negative side of you, I let you destroy me.

The days turned into weeks and before I knew it, the weeks were turning into years.
Every time we would get home from another long hospital stay- because of you- I would stand in front of my mirror, unable to recognize the woman staring back at me. You were destroying me...and I was letting you.

Then I remembered advice my mother used tell me. She would say, “you always have a choice in life, Steph. Always.”

She was right. I could let you destroy me or I could let you empower me, the choice was there. The choice was mine to make.

So I dug deep, deeper than I had ever before and found my inner Supermom strength. The kind of strength you need to cope with a life threatening airway defect. I had it all along.

Before I knew it, my inner strength began strengthening others.

I was not alone, I was not alone.

There were other families-around the world- that you were trying to destroy.

So do you know what I did, Laryngomalacia? I shared with them,  the advice my mother told me...and now they are letting you empower them, not destroy them.  We are all connected, a virtual connection that spans from New Jersey to Australia. From The Netherlands to South Africa. We remain strong-together- when you try and make us weak.

So thank you Laryngomalacia for making me the person I needed to me. Because of you I wouldn’t be the mother, the wife, the person I am today. And you know what? I like...no, love... who I am today. I am strong. I am passionate. I am confident. I am enough.

My voice has been heard around the world,  because of you.

Written by: Stephanie Hueston
CWL Founder & President.

Monday, March 30, 2015

Elijah's Journey


Laryngomalcia - A diagnose I found on my own while arguing with doctors that my sweet 7 day old son should not be breathing like he was .
Laryngomalcia - A diagnose my son was given at just 14 days old. We were told this was "harmless” “He would outgrow it “.
Laryngomalcia - A diagnose that caused my sweet 21 day old baby boy to have surgery that led to further complications.
Laryngomalcia - A diagnose that caused him to be put on two monitors because he stops breathing every single night and can't maintain his oxygen levels.
Laryngomalcia - A diagnose that caused our 6 year to watch her baby brother turn blue , stop breathing and spend countless days in the hospital.
Laryngomalcia - A diagnose that has led to us watching our son 24/7, being sleep deprived, stressed, angry.
Laryngomalcia - A diagnose that caused our son to go through more test , needles, sedation, pain and difficulty breathing more than any child should ever have to endure.
Laryngomalcia - A diagnose that led us to Tracheomalacia, Innominate artery compression syndrome, aortic stenosis, severe reflux, tachypnea, obstructive apnea, cyanosis and asthma.
Laryngomalcia- A diagnose that causes us to spend much of our sons first year in different specialist office while they tried to figure him out.
Laryngomalcia –A diagnose that cause my husband and I to join together and support each other through the toughest of times.
Laryngomalcia – A diagnose that made me realize I am a very good mom and the Mom God chose for Elijah.
Laryngomalcia – A diagnose that has caused us not to take anything for granted and every single breath that we breathe is a precious gift.
Laryngomalcia- A diagnose that does not define our son or hold him back, But has shown the world that age does not make a great fighter but the will and power of God inside him !
Laryngomalcia -A diagnose that we know we will be fighting for some time but WE ARE NOT AFRAID! We have a super hero on our hands!


Written by: Malacia Mom Samantha Secor

Friday, March 20, 2015

Wednesday, February 25, 2015

CWL wins title of MOST LOVED NONPROFIT by Hulafrog.com



Coping With LM, Inc. was honored with the title of MOST LOVED NONPROFIT of 2015
by Hulafrog.com* on February 25, 2015.

Thank you to all who voted! 



*Hulafrog.com is an email newsletter and website with the inside scoop on the best local events, 
 destinations & deals for kids and moms.

Tuesday, February 17, 2015

Hospital gowns are needed!

Photo credit: Lazy Girl Designs
We are  in GREAT need of infant-toddler size 
(boy/girl colors & prints) hospital gowns 

These gowns will be included in our care packages and 
given to Pint-Sized Powerhouses' who are scheduled to have airway surgery.

All donations are appreciated and can be mailed to:
Coping With LM, Inc.
PO Box 313
Port Monmouth, NJ 07758
USA

*please include your name and address so we can properly thank you!*
*all donations are tax deductible and receipts will be given*

Malacia Mom Leah says:
"My son is getting surgery this month and we just received his care package. The thought of my son going into surgery is dreadful but the little surgical gown, Lu The Lamb and the beautiful blanket makes the thought so much more positive!"
 (5 Star Review from GreatNonprofits.com)


Get a FREE gown pattern here and here .

Tuesday, February 3, 2015

Airway Defects: From an EMT's Point of View

Today we have a guest blogger, Mr. Matthew Windram. Matt is an EMT and firefighter in New Jersey. Today he writes about Laryngomalacia from an EMT/first responders point of view... and what YOU need to know and do as a parent to make sure your baby gets the proper care...if something should go wrong.

"Laryngomalacia, or literally "soft larynx" is a very common condition of infancy and is the most common cause of inspiratory breathing noises in infants. Although well known to doctors, nurses, as well as parents of children who have the condition, it is not necessarily well known by members of the emergency services. Therefore you can be a resource to your local police officers, firefighters, and EMTs.

When to call 911 or go to the nearest Emergency Room:

-If the child stops breathing.
-If you witness the child turning blue (this is called Cyanosis)
-Episodes of Apnea, or interruptions in normal breathing
-Any episodes of respiratory distress characterized by the retraction, or sinking in of the chest and/or neck muscles for extended periods of time.

So what can you do?

Contact your local First Aid Squad or EMS providing agency and inform them that a member of your household has laryngomalacia. The squad or agency will then ensure that the EMTs in your area will be made aware of your residence and the possibility of laryngomalacia complications in their response area. Also, in the event of an emergency, be prepared to briefly inform the responding emergency personnel as to what laryngomalacia is, and its resulting complications. Sometimes the fire department or a police officer will arrive before an ambulance and will have only basic knowledge of first aid; so it's important for you to be well informed and ready to help them help you.

It's also important to be ready to explain the condition to the 911 dispatcher as well as if your child has a medical apnea monitor. By making the dispatcher aware of the condition and the monitor, they will be able to make the decision to send paramedics, who are better equipped and trained to deal with more advanced medical conditions.

While you are out with your child (or the child is at daycare ect) it's a good idea for the child to wear a medical alert bracelet in the event of an emergency.

Lieutenant Matthew Windram
Middletown Township Fire Department, Station #2

Wednesday, January 21, 2015

Chibebe Snuggle Pod Giveaway!






To celebrate 5 years of service and 5,000 Facebook members we are excited to announce our
 Chibebe Snuggle Pod Giveaway! 

Chibebe, Australia's original & leading Baby Beanbag brand, is transforming seating solutions for babies and children by delivering functional comfort and safety through unmatched quality and design.

Learn more about Chibebe Snuggle Pods here.

HOW TO ENTER THE GIVEAWAY:

  • COMMENT  on this blog post with your name, child's name, location, Email address and how would a Chibebe Snuggle Pod help your Pint-Sized Powerhouse?


TERMS AND CONDITIONS:
-winner will be randomly selected via Random.org on January 31, 2015.
-in order to be considered, all applicants must complete the three requirements for one entry.
-open to all infant airway defect families, worldwide.
-if winner is International: CWL is not responsible for any custom charges.
-winner will receive an unfilled Chibebe Snuggle Pod (color/print will differ from picture).
-the winner may purchase bean bag filler here
-the winner has three days to contact Coping With Laryngomalacia, Inc. with mailing address or another winner will be chosen. 


*THE GIVEAWAY IS CURRENTLY OPEN*


The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf
The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf
The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf
The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf
The multi-award winning Chibebe Snuggle Pod is a perfectly designed seating solution for infants through to pre high school age. It’s similar to a bean bag in structure, but has been specially designed to provide the best and most consistent support for babies. - See more at: http://www.chibebe.com.au/sprinkles-baby-beanbag-cream/#sthash.POMR8vFj.dpuf

Wednesday, January 7, 2015

Malacia MeetUp Hosts Needed!

New Jersey Malacia MeetUp, Oct 2014.
Coping With LM, Inc. is currently looking for Malacia MeetUp hosts for 2015. 

Malacia MeetUps are local meet-ups for families coping with infant airway defects. Malacia MeetUps take place nationally and internationally, all throughout the year. They are a great way to meet other local families who are walking the same journey as you.

Want to organize a Malacia MeetUp near you?
Contact us today!

Check our Calender of Events for upcoming Malacia MeetUps.