Friday, November 28, 2014

3rd Annual Craft & Vendor Show: Sunday Dec 7th



25+ local vendors, FREE pictures with Santa provided by Lisa Liebeck Photography, face painting by Party Starters Face Painting , a special holiday performance by Essential Elements Dance Studio and more!

FREE admission, FREE parking! 
Bring the whole family!
 
SUNDAY DEC 7 11-3pm

RSVP here:
https://www.facebook.com/events/301321516708171/?source=1

Hosted by: Coping With Laryngomalacia, Inc.
a local nonprofit that helps babies with airway defects. Visit CopingWithLM.org for more info.

Friday, November 21, 2014

Fundraiser In Progress, Your Support Is Needed!


Scentsy Fragrance Online Fundraiser
Nov 1-Dec 7, 2014

25% of your purchase will go to CWL, 
so we can continue to do what we do! 

SHOP NOW:
(click Coping With LM under Open Parties at the top of the webpage)
https://ashnelson.scentsy.us/?partyId=260068514


thanks for your support!

Thursday, November 20, 2014

Bravelets Is Giving Double This #GivingTuesday!


Mark your calendar! 

This year for Giving Tuesday,
 Bravelets is GIVING DOUBLE!! 

For each item purchased on Tuesday, December 2nd 

Bravelets will donate $20 instead of $10 
to Coping With Laryngomalacia, Inc.

SHOP NOW.


 *must use the Coping With LM, Inc. Bravelet page link in order for CWL to receive the donation.*

Tuesday, November 18, 2014

Shop Shutterfly And Help Babies With Infant Airway Defects!

 
We are proud to announce our partnership with Shutterfly!
Shop with Shutterfly or one of their sister sites and 
15% of your purchase will go directly to CWL!

Use this link:
http://copingwithlm.shutterflystorefront.com/
 
*this is an ongoing fundraising effort so please save and  share with your friends & family!*
 
Thank you for your support! 

Wednesday, November 12, 2014

Give Back This Holiday Season





With the holidays quickly approaching, we invite all of our families, 
donors and volunteers to shop for a cause!

Shop our Zazzle Online Shop and a portion of your purchase will go directly to CWL.
Shop now: http://www.zazzle.com/copingwithlm

Shop our Official Online Shop and 100% of your purchase will go to CWL.
Shop now: http://www.copingwithlm.org/#!shop/cp9t

Shop with Amazon Smile and 5% of your purchase will go to CWL.
Shop now: http://tinyurl.com/qjhn9n5

Shop with Bravelets and $10 from every bracelet/necklace sold will go to CWL.
Shop now: https://bravelets.com/bravepage/breathe-easy-coping-with-lm-inc

*thank you for your support!*

graphic design by Lisa Liebeck Photography

Sunday, November 9, 2014

Hat Donations Needed!

 
Coping With LM, Inc. is in great need handmade hats 
(size 6-24 months, boy/girl colors) 
 
If you would like to help, donations can be mailed to:
Coping With LM, Inc.
Donations
PO Box 313
Port Monmouth NJ 07758
USA

Please be sure to include your name and 
mailing address so we can properly thank you!
 
Don't sew but still want to support the cause?


Sunday, November 2, 2014

Pint-Sized Powerhouse Maverick's Journey

 Back in May Maverick was 8 weeks old and diagnosed with LM. They did a scope but couldn't see much because of his severe reflux. So a month later they re did the scope after his meds were adjusted. It showed severe LM. We were always concerned about his breathing because he would pause and would take forever to catch his breath. I took numerous videos and took him to his pediatrician too many times to count. 


I stayed up all night listening to him struggle to breathe there were so many times I had to pick him up to take a breath. So ENT decided to do a Supraglottoplasty asap. On July 2, 2014 he was scheduled for surgery. They had a tough time tubing for the surgery. The doctor then came out and said everything went great. They would let us see him as soon as he starts waking up. It was he longest 30 minutes of my life.

Finally they called us back and I got to hold my sweet boy, but then I noticed he was starting to have a nose bleed. The nurse took him from me and put him over her shoulder to lay him down then blood started pouring out of his little nose and mouth. Within seconds there was about 20 nurses and doctors surrounding my little boy. All my husband and I could do was just watch in horror as our little guy was struggling. It took them an hour and a half to stop the bleed. As soon as the doctor was prepping to take him back to the OR he stopped. It was the longest night of my life. He was so uncomfortable. The next day was far from easy the added swelling and what they believe  is airway obstruction caused him to quit breathing for them 3 times. He would get upset and wouldn't be able to catch his breath and would go limp and blue. They put a neck brace on him to keep his tiny jaw from falling back and closing off the airway it worked. We were seconds away from getting a trach.


He would obstruct in his sleep and would drop his oxygen level way down into the 20s and 40s. They started him on oxygen and positioning him right and it has worked wonders. Along with 4 breathing treatments.


We are now in Late October early November and we are still on a pulse ox and oxygen during sleep car seats and when I can't sit and listen to him. We hope to have him off everything by this spring. But it all depends on our little hero. We go for a sleep study in January this will be his third. He's been doing amazing and we are so proud of him.  Those were the scariest moments of my life and it took me this long to be able to tell you our story.



I can't ever thank Coping With LM, Inc. enough. 
You give me the strength knowing I'm not the only one.
-Maverick's Mommy , Audrey