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Tuesday, April 19, 2016

Natalie's Story

The good follows the bad.

This is my pint sized powerhouse, Natalie. She turned 3 a week ago. She had a tough road like a lot of the little ones here. She had a supra done at 6 weeks, adjusted age 1 week. We had tube feeds, tons of meds, therapies and so on. It wasn't easy on her or us. We had good days and then it seemed like we took 20 steps back. 

Natalie, age 3.


I remember her being 9 months old and having to syringe feed her for days because she wouldn't eat. I just sat in the hallway crying. This group saved us and my sanity. We will always be grateful for you. Even though it felt like it would never end, things got better....slowly. We don't have symptoms now unless she gets sick. She no longer has anymore therapies or special instructions to help get her caught up on her milestones. She's ahead at this point! As bad as it seems, one day it will get better.
 I love my pint sized powerhouse! 
(She picked out this shirt. It's her favorite)

-Laryngomalacia Mom, Cynthia 

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