Image Map

Wednesday, April 26, 2017

How One Mother Turned Her Daughters Health Crisis Into An Opportunity To Help Others

Coping WIth Laryngomalacia, Inc. will be referred to as CWL in this blog post.

In 2010, Stephanie Hueston’s second daughter, Seraphina was born. Shortly after birth it was very obvious something was very wrong. The newborn was blue and struggling to breathe. Stephanie was assured her daughter was suffering from “normal newborn congestion” and was told it would resolve within a few days.  As the days passed Seraphina’s health started deteriorating. She was gasping for every breath and stopped breathing multiple times  a day.  Stephanie rushed Seraphina to the pediatrician's office and demanded she see a specialist. Something was wrong with her baby, she just didn’t know what.




Five weeks after Seraphina’s birth, she was diagnosed with an airway defect called laryngomalacia. Laryngomalacia is a congenital defect of the larynx. The tissues above the larynx are floppy and omega shaped. When the infant breathes in, they collapse-creating an airway obstruction. For almost 95% of all cases LM is a common, benign condition. No further medical treatment is required after initial diagnosis.  And then there is a very small percentage of babies that are diagnosed with life threatening LM. Stephanie’s daughter fell into this category. Seraphina's doctor had later told Stephanie, on a scale of 1-10 Seraphina was 12; the worse case of LM he has ever seen.


On June 11, 2010 Seraphina had airway surgery known as a supraglottoplasty. During a supraglottoplasty, the surgeon cuts each side of the epiglottis tissue, creating more room in the airway for when the floppy larynx collapses. The surgery does not cure LM but helps improve the symptoms.  After surgery, Seraphina was transferred to ICU where she was put on oxygen, steroids to keep her lungs open and morphine to ease the pain.


As the summer went on, Laryngomalacia Warrior Seraphina started improving while Stephanie was falling apart. Exhausted, scared and overwhelmed  Stephanie remembered advice her mother had given her--in every situation, you have a choice. Laryngomalacia wasn’t any different.  Stephanie could let laryngomalacia destroy her or let it empower her, the choice was hers.

Stephanie, Founder & President of Coping With Laryngomalacia, Inc.



Coping With Laryngomalacia, Inc. was founded in July of 2010 and is the first 501 (c ) 3 nonprofit organization in the USA and in the world that provides support, strength and education for families coping with laryngomalacia, tracheomalacia and bronchomalacia--all defects of the airway.  The CWL Team is made up 100% of volunteers who donate their time, support and passion to the cause daily--while many of them are coping with LM themselves.


In addition to 24/7 online support and education, CWL offers feeding difficulty support and resources (Gelmix Thickener), a care package program ingeniously titled the Breathe Easy Care Package Program as well their Pint-Sized Powerhouse Grant Program which helps families pay outstanding medical bills. The organization also offers a worldwide directory of Pediatric Ear, Nose and Throat doctors who specialize in LM. After finding a knowledgeable ENT, parents are then able to print out suggested questions they should ask at the first visit.

What To Ask Your ENT


At the start of the New Year, CWL extended their partnership with Chibebe Snuggle Pod AUS and USA. Because of Chibebe's astounding support, babies (six months old and younger) with laryngomalacia can receive a Snuggle Pod, free of charge through CWL.


Last year alone, CWL gave 107 care packages to babies with life threatening laryngomalacia and $500.00 in Pint-Sized Powerhouse Grants! With a community reaching from New Jersey to California, from Canada to England and South Africa to Australia; parents are supported, educated and empowered thanks to the ongoing support from CWL's incredible donors and volunteers.

Seraphina with #LuTheLamb assembling care packages 




CWL's future is bright!
Planning for World Airway Defects Day is now underway, supporters are encouraged to paint their nails light blue for LM on July 10th to show their support!
The Lollipops For LM Project will be back this Halloween while CWL Founder & President Stephanie Hueston works closely with families who are walking the same journey she once walked.

World Airway Defects Day



For more information on CWL on how they help families cope please visit CopingWithLM.org
or find them on Facebook, Twitter, Pinterest and Instagram.

Want to help? Go here.

Was your baby just diagnosed with laryngomalacia? Start here.

Need to talk to someone directly?
Email Stephanie anytime at copingwithlm@yahoo.com

9 comments:

  1. How do I donate crochet and knit baby items to this organization? My email is theboger03@hotmail.com

    ReplyDelete
    Replies
    1. BEST POWERFUL AND CHEAP LOVE SPELL CASTER DR JUMBA

      This is my testimony about the good work of a man who helped me..I base in US .My life is back!!! After 8 years of marriage, my husband left me and left me with our three kids. I felt like my life was about to end, and was falling apart. Thanks to a spell caster called Dr jumba who i met online . On one faithful day, as I was browsing through the internet, I was searching for a good spell caster that can solve my problems. I came across testimonies about this particular spell caster on https://manifest277.blogspot.com  and on  other website  . Some people testified that he brought their Ex lover back, some testified that he restores womb, some testified that he can cast a spell to stop divorce and so on. There was one particular testimony I saw, it was about a woman called grace,she testified about how Dr jumba brought back her Ex lover in less than 48 hours and at the end of her testimony she drop his email. After reading ,I decided to give Dr jumba a try and i got a perfect spell done for me . I contacted him on wiccalovespelltools@gmail.com , wiccalovespelltools@yahoo.com or call his mobile number on +19085174108    and indeed he restored my marriage and am so grateful.  

      Delete
    2. I want to thank Dr Emu a very powerful spell caster who help me to bring my husband back to me, few month ago i have a serious problem with my husband, to the extend that he left the house, and he started dating another woman and he stayed with the woman, i tried all i can to bring him back, but all my effort was useless until the day my friend came to my house and i told her every thing that had happened between me and my husband, then she told me of a powerful spell caster who help her when she was in the same problem I then contact Dr Emu and told him every thing and he told me not to worry my self again that my husband will come back to me after he has cast a spell on him, i thought it was a joke, after he had finish casting the spell, he told me that he had just finish casting the spell, to my greatest surprise within 48 hours, my husband really came back begging me to forgive him, if you need his help you can contact him with via email: Emutemple@gmail.com or add him up on his whatsapp +2347012841542 is willing to help any body that need his help. 

      Delete
  2. BEST POWERFUL AND CHEAP LOVE SPELL CASTER DR JUMBA

    This is my testimony about the good work of a man who helped me..I base in US .My life is back!!! After 8 years of marriage, my husband left me and left me with our three kids. I felt like my life was about to end, and was falling apart. Thanks to a spell caster called Dr jumba who i met online . On one faithful day, as I was browsing through the internet, I was searching for a good spell caster that can solve my problems. I came across testimonies about this particular spell caster on https://manifest277.blogspot.com  and on  other website  . Some people testified that he brought their Ex lover back, some testified that he restores womb, some testified that he can cast a spell to stop divorce and so on. There was one particular testimony I saw, it was about a woman called grace,she testified about how Dr jumba brought back her Ex lover in less than 48 hours and at the end of her testimony she drop his email. After reading ,I decided to give Dr jumba a try and i got a perfect spell done for me . I contacted him on wiccalovespelltools@gmail.com , wiccalovespelltools@yahoo.com or call his mobile number on +19085174108    and indeed he restored my marriage and am so grateful.  

    ReplyDelete
  3. LOVE SPELL TESTIMONY

    Thank you so much DOCTOR ODUNGA for making my ex boyfriend come back to me. I am writing this wonderful testimony in respect of this man. He made all my wishes come true. My boyfriend and i dated for more than 3 years and although we had had so many quarrels but we never thought of a break up. One day, he called me over the phone telling me how he is tired of the relationship and cannot see anywhere that we are heading to. Months have passed and my boyfriend did not contact me anymore and i did not hear from him anymore and his cell phone was disconnected. I knew i need to seek for help because of the so much love i have for him. I contacted this great spell caster because i have never contacted anyone before and i tell you that after a week of contact, my ex boyfriend called me and asked to see me and the next morning, he wore a ring on my finger. I am very happy because i am soon going to be a married girl with the help of this great spell caster. I promised to manifest your works to everyone and please contact this man to help you at

    Email: odungaspelltemple@gmail.com

    OR contact him on WhatsApp +2348167159012

    ReplyDelete
  4. LOVE SPELL TESTIMONY

    Thank you so much DOCTOR ODUNGA for making my ex boyfriend come back to me. I am writing this wonderful testimony in respect of this man. He made all my wishes come true. My boyfriend and i dated for more than 3 years and although we had had so many quarrels but we never thought of a break up. One day, he called me over the phone telling me how he is tired of the relationship and cannot see anywhere that we are heading to. Months have passed and my boyfriend did not contact me anymore and i did not hear from him anymore and his cell phone was disconnected. I knew i need to seek for help because of the so much love i have for him. I contacted this great spell caster because i have never contacted anyone before and i tell you that after a week of contact, my ex boyfriend called me and asked to see me and the next morning, he wore a ring on my finger. I am very happy because i am soon going to be a married girl with the help of this great spell caster. I promised to manifest your works to everyone and please contact this man to help you at

    Email: odungaspelltemple@gmail.com

    OR contact him on WhatsApp +2348167159012

    ReplyDelete
  5. EFFECTIVE LOVE SPELL TO GET EX HUSBAND/BOYFRIEND OR EX WIFE/GIRLFRIEND AND CURE HERPES AND INFERTILITY THAT WORKS WITHIN 24 HOURS.

     Contact Dr. Odunga at odungaspelltemple@gmail.com OR Whats App/CALL +2348167159012

    I got my ex husband back to me and also got fertile and gave birth to twin girls after 12 years of marriage.
    When I came online last year, I saw a testimony about Doctor ODUNGA and how he has been helping people with marriage issues and I decided to contact him. We spoke on email at odungaspelltemple@gmail.com and later he gave me his WhatsApp number which is +2348167159012. He assured me he would help me get my ex husband back after 3 years of no contact. Doctor Odunga is the best spell caster I must say. My husband called me after 24 hours of contact. The third day, I received natural herbs for fertility and after using it, I became fertile and conceived. I and my husband reconnected, had sex and I was pregnant. Presently I am happy to say I am the mother of twin girls and this is ALL THANKS TO DOCTOR ODUNGA. I came online to say this If you need help, I believe you are saved with this man.  

    Contact his email at odungaspelltemple@gmail.com

     OR Whats App/Call +2348167159012 and you too will give a testimony too to help others

    ReplyDelete
  6. Am here to testify what this great spell caster done for me. i never believe in spell casting, until when i was was tempted to try it. i and my wife have been having a lot of problem living together, she will always not make me happy because she have fallen in love with another man outside our relationship, i tried my best to make sure that my wife leave this woman but the more i talk to her the more she makes me fell sad, so my marriage is now leading to divorce because she no longer gives me attention. so with all this pain and agony, i decided to contact this spell caster to see if things can work out between me and my wife again. this spell caster who was a man told me that my wife is really under a great spell that she have been charm by some magic, so he told me that he was going to make all things normal back. he did the spell on my wife and after 5 days my wife changed completely she even apologize with the way she treated me that she was not her self, i really thank this man his name is Dr ose he have bring back my wife back to me i want you all to contact him who are having any problem related to marriage issue and relationship problem he will solve it for you. his email is oseremenspelltemple@gmail.com he is a man and his great. wish you good time.
    He cast spells for different purposes like
    (1) If you want your ex back.
    (2) if you always have bad dream
    (3) You want to be promoted in your office.
    (4) You want women/men to run after you.
    (5) If you want a child.
    (6) You want to be rich.
    (7) You want to tie your husband/wife to be yours forever.
    (8) If you need financial assistance.
    (9) HIV/AIDS CURE
    (10) is the only answer to that your problem of winning the lottery

    Contact him today on oseremenspelltemple@gmail.com or whatsapp him on +2348136482342

    ReplyDelete
  7. DR EMU WHO HELP PEOPLE IN ANY TYPE OF LOTTERY NUMBERS

    It is a very hard situation when playing the lottery and never won, or keep winning low fund not up to 100 bucks, i have been a victim of such a tough life, the biggest fund i have ever won was 100 bucks, and i have been playing lottery for almost 12 years now, things suddenly change the moment i came across a secret online, a testimony of a spell caster called DR EMU, who help people in any type of lottery numbers, i was not easily convinced, but i decided to give try, now i am a proud lottery winner with the help of DR EMU, i won $1,000.0000.00 and i am making this known to every one out there who have been trying all day to win the lottery, believe me this is the only way to win the lottery.

    Contact him via email Emutemple@gmail.com
    What's app +2347012841542
    Https://emutemple.wordpress.com/

    ReplyDelete