How To Support A Family Who Is Coping With Laryngomalacia

You are scrolling through your news feed and see a post from an old friend, her baby was just diagnosed with a life threatening airway disorder. Her eight week old is now having emergency airway surgery.

Your son just called you at work (something he never does), the doctor just prescribed your grandchild an apnea monitor. The medical supply company will be delivering it tonight. 

You're babysitting your niece for the first time. She is choking with every feed, her stridor is so loud despite position changes- how does your sister cope with this?

Since there is no prenatal test for laryngomalacia (Polyhydramnios may be a marker though), every family who receives the diagnosis of mild to life threatening laryngomalacia world is turned upside down. 

Feeding difficulties to blue spells to major airway surgery, 

these parents are in desperate need of love and support. 

So what can you do to help? 

Stephanie says, "Offer to bring food or help clean the house. Be a listening ear."

Tiffany says, "Not come around when you have or have been exposed to illness (yes, this is a problem), wash your hands before touching baby, don’t smoke before being around baby."

Erica says, " Just ask. My support needs are different each day."

Erin says, "Please get CPR/First Aid Certified."

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Lisa says, "Ask about doctor appointments and offer to watch the siblings."

Trisha says, "A friend paid to have our carpets and air ducts professionally cleaned and changed all our air filters when we were at the hospital. So we came home to the cleanest air possible. It was something Id never had thought to do. I felt it was very thoughtful."

Sponsor a care package here.

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