Tuesday, October 24, 2017

To The Parent Whose Baby Has Just Been Diagnosed With Laryngomalacia

Dear Friend,

So your baby was just diagnosed with laryngomalacia. Can you pronounce it? Don’t worry, I couldn’t either. In fact, it took me three months to learn the correct pronunciation and spelling.

In time you will be able to spell it backwards. You will know more about this airway disorder than you ever thought possible. You will become someone we like to call a Malacia Mom (or Dad!). You will wear this title will honor. It will be a source of strength in the darkest of moments...a reminder that you CAN and WILL get through this.

Having a baby with an airway disorder may be one of the hardest journeys you will ever have to walk. And that’s okay. Do not be angry at this journey, it is here to teach you. Let it teach you. If you allow, the journey will  provide you with a whole new view on life. A more simple, wholehearted , grateful for every breath kind of view. 

Journeys have no end...do not spend your journey full of anger...instead,  spend your time focusing on the walk. Soak in the sunlight wherever possible, remain graceful when your heart is full of worry and always be kind... your journey is hard, that we know but someones journey may be even harder.

Friends will leave and friends will come. Friends will leave because it is their time to leave, not because their intent is to hurt you. Take a deep breath and let them go as beautifully as you let them in. New friends will arrive with hearts wide open. They will know how important a hug and a hot, home cooked meal is. Hug them back, tightly. Be thankful for the future with them.



Your partner, he (she) is scared. In fact, he is very scared. That anger he is showing? That is him letting you know all those emotions you are feeling, he is feeling them too.  It kills him to see you hurt like this... and there are no words to describe the pain HE feels seeing his baby struggle like this. Let him know how you feel and what you need. He doesn’t know what to do. He never thought he would have a baby with an airway disorder. You both can survive this but  if he chooses to disconnect and walk away, let him. Holding onto a relationship when its time for it to end will only fill you of anger, bitterness and resentment. Your baby needs ALL of you right now. You will be okay. You will recover.

You will grieve. Grief comes in all shapes and sizes and it always seems to hit you when your standing in line at the food store. Allow yourself to grieve for the healthy baby you were not given. This is a normal process ... do not let anyone tell you different.



Listen to your instinct. You know your baby better than any monitor or medical test. Let your voice be heard and if a doctor speaks over you--find a new doctor. Get to the best hospital.
Bills can be paid later, your child needs to breathe now.

Walk this journey with grace. There are going to be some high, high mountains to climb and the rain will pour... choose to let the good strengthen you while letting the bad empower you. Every step you take on this journey will leave footprints your Pint-Sized Powerhouse will follow. Show your child there is always a reason to have a Hope...anger doesn’t make life changing decisions  and the good always follows the bad.
You are an Malacia Mom (or Dad) for a reason... stay brave and breathe. 

Written by: CWL Founder & President Stephanie Hueston

12 comments:

  1. ❤️ in tears reading this. So beautiful!

    ReplyDelete
    Replies
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    2. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

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      My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

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      My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

      infinitylovespell@gmail.com or infinitylovespell@yahoo.com

      WhatsApp +2348118829899

      Blog http://infinitylovespell1.blogspot.com

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    3. Contact Dr Raypower at Urgentspellcast@gmail.com if you want to get your Husband, Wife, Boyfriend and Girlfriend back now and regain your happiness.

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      Contact Dr Raypower at Urgentspellcast@gmail.com if you want to get your Husband, Wife, Boyfriend and Girlfriend back now and regain your happiness.

      Hi i am Laura Christ from USA I have just experience the wonders of Dr. Raypower love spell, that have been spread on the internet and worldwide, How he marvelously helped people all over the world to restored back their marriage life and get back lost lovers, and also help to win lottery. I contacted him after going through so many testimonies from different people how he help to bring back ex lover back, i told him about my husband that abandoned me about 8 months ago, and left home with all i had.. Dr Raypower only told me to smile and have a rest of mind he will handle all in just 24 hours, After the  second day my husband called me, i was just so shocked, i pick the call and couldn't believe my ears, he was really begging me to forgive him and making promises on phone.. He came back home and also got me a new car just for him to proof his love for me. i was so happy and called Dr Raypower and thanked him, he only told me to share the good news all over the world .. Well if you need an effective and real spell caster contact Dr Raypower Via email: Urgentspellcast@gmail.com  or Call or WhatsApp: +1 (424) 330-8109 and also see more reviews about him on his website: https://urgentspellcast.wordpress.com/ 

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    4. SAVE YOUR RELATIONSHIP AND GET YOUR BOYFRIEND/GIRLFRIEND BACK VISIT: website: https://doctor0lovespell.wixsite.com/mysite-2
      My love life has changed for better since the interference of the most powerful spell caster on earth called Dr.LOVE0 in my relationship, My testimony today is in regard of the help that Dr.LOVE0 render me when my lover departed from me. am from UAE and it gives me joy today in writing this testimony as a way of showing my appreciation to Dr.LOVE0 and at the same time i am use this opportunity to advise those that are finding stress and pains in their relationship or marriages to contact Dr.LOVE0 who is the best spell caster in the world through these contact details via email: (doctor0lovespell@gmail. com) or visit his website: https://doctor0lovespell.wixsite.com/mysite-2  or contact his FB page: https://www.facebook.com/Lovespellthatworkfastusa  also check his blogs: https://doctorlovespell0.blogspot.com/ Because Dr.LOVE0 is the only one that can restore your marriage or relationship with love. He can also help to win lottery spell

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  2. I am here to give my testimony about chief dr lucky who helped me in my life, i want to inform the public how i was cured from herpes simplex virus by chief dr lucky, i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on herpes and i saw comment of people talking about how chief dr lucky cured them. when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, am a free person now without problem, my herpes result came out negative. I pray for you chief dr lucky am cured you can also get your self cured my friends if you really need my doctor help, you can reach him now.
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  3. My husband and I have been married for about 7 yrs now. We were happily married with two kids, a boy and a girl. 3 months ago, I started to notice some strange behavior from him and a few weeks later I found out that my husband is seeing someone. He started coming home late from work, he hardly care about me or the kids anymore, Sometimes he goes out and doesn't even come back home for about 2-3 days. I did all I could to rectify this problem but all to no avail. I became very worried and needed help. As I was browsing through the Internet one day, I came across a website that suggested that Dr Great can help solve marital problems, restore broken relationships and so on. So, I felt I should give him a try. I contacted him and he did a spell for me. Two days later, my husband came to me and apologized for the wrongs he did and promise never to do it again. Ever since then, everything has returned back to normal. I and my family are living together happily again.. All thanks to Dr Great . If you need a spell caster that can cast a spell that truly works, I suggest you contact him. He will not disappoint you. This is his E-mail: 

    infinitylovespell@gmail.com or infinitylovespell@yahoo.com

    WhatsApp +2348118829899

    Blog http://infinitylovespell1.blogspot.com

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  4. Hello, I am Monalisa. After being in relationship with my husband for years, he broke up with me. I did everything within my reach to bring him back but all was in vain, I wanted him back so badly because of the love I had for him, I begged him with everything, I made promises but he refused. I explained my problem to my friend and she suggested that I should rather contact a spell caster that could help me cast a spell to bring him back , I had no choice than to try it. I messaged the spell caster, and he assured me there was no problem and that everything will be okay before three days. He cast the spell and surprisingly on the second day, my husband called me. I was so surprised, I answered the call all he said was that he was so sorry for everything that had happened He wanted me to return to him. He also said he loved me so much. I was so happy and went to him that was how we started living together happily again. The spell casters email is : [dredesspellcaster@gmail.com]. You can email him if you need his assistance in your relationship or any other Case.

    DR. EDES SPELL CASTER could help you with the following:

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  5. I NEED A LOVE SPELL THAT WILL MANIFEST WITHIN 24 HOURS CONTACT (DR JUMBA ) HE HIS THE BEST LOVE SPELL CASTER WHO HELPED ME RESTORE HAPPINESS BACK TO MY RELATIONSHIP 
    Hello everyone i want to testify of the great and powerful spell caster named Dr Jumba who brought back my ex who left me and got engaged to another girl,We where happy together when all of a sudden he just change he used to call me every morning and and night before going to bed but all that stopped when i call him he yell at me and told me he didn't want to have anything to do with me anymore i was so sad and confused i didn't know what to do then i went online to search on how to get back my ex then i found  an article where someone was talking about how the great and powerful Dr Jumba helped her and she left his email address i took it and contacted him i told him my problem he only smiled and told me to relax everything will be OK i did everything he asked me to do  and he assured me that after 24hrs he will be back,To my greatest surprise the next morning it was my boyfriend he came back knelling and begging for me to accept him back now we are so happy together he can also help you contact him at   wiccalovespelltools@gmail.com or  wiccalovespelltools@yahoo.com   text or call him +19085174108  
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    ReplyDelete
  6. Contact Dr Raypower at Urgentspellcast@gmail.com if you want to get your Husband, Wife, Boyfriend and Girlfriend back now and regain your happiness.

    Hi i am Laura Christ from USA I have just experience the wonders of Dr. Raypower love spell, that have been spread on the internet and worldwide, How he marvelously helped people all over the world to restored back their marriage life and get back lost lovers, and also help to win lottery. I contacted him after going through so many testimonies from different people how he help to bring back ex lover back, i told him about my husband that abandoned me about 8 months ago, and left home with all i had.. Dr Raypower only told me to smile and have a rest of mind he will handle all in just 24 hours, After the  second day my husband called me, i was just so shocked, i pick the call and couldn't believe my ears, he was really begging me to forgive him and making promises on phone.. He came back home and also got me a new car just for him to proof his love for me. i was so happy and called Dr Raypower and thanked him, he only told me to share the good news all over the world .. Well if you need an effective and real spell caster contact Dr Raypower Via email: Urgentspellcast@gmail.com  or Call or WhatsApp: +1 (424) 330-8109 and also see more reviews about him on his website: https://urgentspellcast.wordpress.com/ 

    ReplyDelete
  7. SAVE YOUR RELATIONSHIP AND GET YOUR BOYFRIEND/GIRLFRIEND BACK VISIT: website: https://doctor0lovespell.wixsite.com/mysite-2
    My love life has changed for better since the interference of the most powerful spell caster on earth called Dr.LOVE0 in my relationship, My testimony today is in regard of the help that Dr.LOVE0 render me when my lover departed from me. am from UAE and it gives me joy today in writing this testimony as a way of showing my appreciation to Dr.LOVE0 and at the same time i am use this opportunity to advise those that are finding stress and pains in their relationship or marriages to contact Dr.LOVE0 who is the best spell caster in the world through these contact details via email: (doctor0lovespell@gmail. com) or visit his website: https://doctor0lovespell.wixsite.com/mysite-2  or contact his FB page: https://www.facebook.com/Lovespellthatworkfastusa  also check his blogs: https://doctorlovespell0.blogspot.com/ Because Dr.LOVE0 is the only one that can restore your marriage or relationship with love. He can also help to win lottery spell

    ReplyDelete
  8. This is my testimony about the good work of a man who helped me..I base in US .My life is back!!! After 8 years of marriage, my husband left me and left me with our three kids. I felt like my life was about to end, and was falling apart. Thanks to a spell caster called Dr jumba who i met online . On one faithful day, as I was browsing through the internet, I was searching for a good spell caster that can solve my problems. I came across testimonies about this particular spell caster on https://manifest277.blogspot.com  and on  other website  . Some people testified that he brought their Ex lover back, some testified that he restores womb, some testified that he can cast a spell to stop divorce and so on. There was one particular testimony I saw, it was about a woman called grace,she testified about how Dr jumba brought back her Ex lover in less than 48 hours and at the end of her testimony she drop his email. After reading ,I decided to give Dr jumba a try and i got a perfect spell done for me . I contacted him on wiccalovespelltools@gmail.com , wiccalovespelltools@yahoo.com or call his mobile number on +19085174108    and indeed he restored my marriage and am so grateful.  

    ReplyDelete