Your $25.00 donation will send a care package to a laryngomalacia baby in ICU recovering from airway surgery, together we can make a difference!
DONATE NOW.
Tuesday, November 10, 2015
Thursday, November 5, 2015
Jamberry Nails Online Fundraiser, happening now!
Tuesday, October 13, 2015
How Can I Help?
Coping With Laryngomalacia, Inc. is a registered 501 (c) 3 nonprofit organization that receives no government funding or grants. Coping With LM, Inc. is able to fulfill it's mission thanks to it's generous donors and volunteers who donate their precious time and talents, daily.
Q: How do I make a monetary donation online?
A: You may donate securely (here) on our website via PayPal.
a $25 donation will send one care package to a baby in ICU recovering from airway surgery.
Q: Where do I send a donation by mail?
A: You can make all checks payable to:
Coping With LM, Inc.
PO Box 313 Port Monmouth, NJ 07758 USA
Q: Is my donation tax deductible?
A: Yes! You will receive a receipt (for personal and tax purposes) and thank you card in the mail 7-10 days after your donation in received.
Q: I would like to donate to your Breathe Easy Care Package Program, what items are you in need of?
A: We are always in need of the following:
- handmade baby blankets
- made from new fleece, soft yarn or cotton.
-all colors and prints are accepted.
-size 36in x 36in is preferred. - handmade hats
-made from new fleece, soft yarn or cotton.
-size 3 months through 2T. - handmade hospital gowns
-made from new cotton.
-all colors and prints are accepted.
-sizes newborn through 2T. - handmade (or store bought) baby lovies and rattles (small item for baby to hold/play with while in the hospital)
-made from new soft yarn.
-if store bought, item must still have tags on it.
-all colors are accepted. - reading books, coloring books, crayons and stickers (for children 2 years+ who are in the hospital)
-items must be new and unused.
-boy and girl colors/characters accepted. - go here for free patterns and ideas.
- all donations can be mailed to: Coping With LM, Inc. PO Box 313 Port Monmouth, NJ 07758 USA
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about our current volunteer opportunities.
Q: Does Coping With LM, Inc. have any ongoing fundraisers?
A: Current ongoing fundraisers include:
- Amazon Smile- .05% of each eligible purchase goes to Coping With LM, Inc.
- Bravelets- $10 from each bracelet purchased goes to Coping With LM, Inc.
Q: I would like to host a Malacia MeetUp, how do I begin?
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about hosting a Malacia MeetUp near you.
Q: I am interested in learning more about fundraising for Coping With LM, Inc. Who should I contact?
A: Please contact Stormye at StormyeW@gmail.com to learn more about organizing a local event near you. Please contact Stephanie at CopingWithLM@yahoo.com to learn more about online fundraising (Etsy shop owners, Direct Sales Reps, ect.) and New Jersey events.
Q: I/my child has been greatly supported and strengthen by Coping With LM, Inc. Where can I share my/our story?
A: We encourage all of our families, donors and volunteers to share their experiences and stories on our Great Nonprofits page, found here.
Q: Do you have an awareness day for airway defects?
A: Yes! #AirwayDefectsDay is July 10, 2016. We encourage all of our supporters to paint their nails light blue for laryngomalacia!
Wednesday, May 20, 2015
CWL HONORED AS TOP-RATED NONPROFIT
For Immediate Release:
Coping With Laryngomalacia, Inc. HONORED AS 2015 TOP-RATED NONPROFIT
GreatNonprofits.org Award is based on Positive Online Reviews
Port Monmouth, New Jersey (May 20, 2015) –Coping With Laryngomalacia, Inc. announced today that it has been honored with a prestigious 2015 Top-Rated Award by GreatNonprofits, the leading provider of user reviews about nonprofit organizations.
“We are excited to be named a Top-Rated 2015 Nonprofit,” says Stephanie Hueston, CWL Founder & President. "We are proud of our accomplishments this year including, the addition of macrame bracelets to our care packages. Each bracelet is hand-stamped with the words “Just Breathe” on them. We hope our mothers will wear the bracelet on their child’s surgery day as a symbol of strength and courage, a reminder that they will get through this- all they have to do is just breathe.”
The Top-Rated Nonprofit award was based on the large number of positive reviews that Coping With Laryngomalacia, Inc. received – reviews written by volunteers, donors and clients. People posted their personal experience with the nonprofit. For example, one person wrote, "I found this site trying to find information about laryngomalacia as I had heard about and suspected my daughter had it. Prior to her diagnosis, the site was helpful is helping me understand the diagnosis process and what types of questions to ask the doctors. After her diagnosis, it has been a source of support and information. We are very appreciative of the service of this organization, as well as the effort they are making in helping to bring awareness to laryngomalacia!”
While the Top-Rated Awards run through the end of October, Coping With Laryngomalacia, Inc. was part of the inaugural group to qualify for the year. In addition, they been added to GreatNonprofits #GivingTuesday Guide—an interactive guide of the top nonprofits throughout the year. Look for this near the holidays.
“Savvy donors want to see the impact of their donations more than ever,” said Perla Ni, CEO of GreatNonprofits, “People with direct experience with Coping With Laryngomalacia, Inc. have voted that the organization is making a real difference.”
Being on the Top-Rated list gives donors and volunteers more confidence that this is a credible organization. The reviews by volunteers, clients and other donors show the on-the-ground results of this nonprofit. This award is a form of recognition by the community.
About Coping With Laryngomalacia, Inc.
Coping With Laryngomalacia, Inc. (an all volunteer organization) is the first 501 (c) 3 nonprofit organization in the USA and in the world that provides support, strength and education for families coping with infant airway defects.
Visit CopingWithLM.org for more information.
About GreatNonprofits
GreatNonprofits is the leading site for donors and volunteers to find reviews and ratings of nonprofits. Reviews on the site influence 30 million donation decisions a year. Visit www.greatnonprofits.org for more information.
Media Contact
CWL Founder & President, Stephanie Hueston. CopingWithLM@yahoo.com
Wednesday, April 29, 2015
Saturday, April 11, 2015
Big Sister Educates The Public On LM
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| Rylan, age 13 |
For her 4H presentation, Rylan choose to speak about laryngomalacia on her brother Trace's behalf. She
won the gold medal and gets to move up to the California Southern
Sectionals. Way to go Rylan, we are so very proud of you!
.JPG) |
| Pint-Sized Powerhouse Trace collecting blankets for Coping With LM, Inc. |
 |
| Rylan, Gold Medal winner! |
Monday, April 6, 2015
Because Of You
Dear Laryngomalacia,
Our journey began five years ago. Five years ago, I was angry at you. Very...intensely... angry. Life as I knew it was a distant memory and I blamed you. I fought you, I only saw the negative side of you, I let you destroy me.
The days turned into weeks and before I knew it, the weeks were turning into years.
Every time we would get home from another long hospital stay- because of you- I would stand in front of my mirror, unable to recognize the woman staring back at me. You were destroying me...and I was letting you.
Then I remembered advice my mother used tell me. She would say, “you always have a choice in life, Steph. Always.”
She was right. I could let you destroy me or I could let you empower me, the choice was there. The choice was mine to make.
So I dug deep, deeper than I had ever before and found my inner Supermom strength. The kind of strength you need to cope with a life threatening airway defect. I had it all along.
Before I knew it, my inner strength began strengthening others.
I was not alone, I was not alone.
There were other families-around the world- that you were trying to destroy.
So do you know what I did, Laryngomalacia? I shared with them, the advice my mother told me...and now they are letting you empower them, not destroy them. We are all connected, a virtual connection that spans from New Jersey to Australia. From The Netherlands to South Africa. We remain strong-together- when you try and make us weak.
So thank you Laryngomalacia for making me the person I needed to me. Because of you I wouldn’t be the mother, the wife, the person I am today. And you know what? I like...no, love... who I am today. I am strong. I am passionate. I am confident. I am enough.
My voice has been heard around the world, because of you.
Written by: Stephanie Hueston
CWL Founder & President.
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