The Good Will Come

Almost six years ago I was forcefully introduced to the world of life threatening laryngomalacia. Since only 5% of babies who are diagnosed with laryngomalacia, will be diagnosed with life threatening laryngomalacia, I had a very hard time finding outside support and information. I was alone and lost in my journey. Unable to connect with other parents, unable to see that the good really does follow the bad.

 

pictured: Seraphina, age 5, putting together care packages for 

her fellow laryngomalacia friends.

 

Somehow, life went on... in between all the hospital stays, airway surgery, oxygen tanks and those long, long nights I slept with my hand on her chest- feeling every breath. Those nights turned into days, then into weeks then months and before I knew it, I was singing Happy Birthday to my baby- on her 5th birthday. She survived. I survived. We survived.

I am now at a place in my journey where I can see the good. I witness the good, everyday. No longer is my baby hooked to an apnea monitor, no longer does she turn blue, no longer does she choke while feeding.

Our days are filled with cookie baking, reading Little House On The Prairie and pottery class.

If you are struggling to see the good, please know it WILL come. The sun will shine again.

Coping With Laryngomalacia, Inc. is here for you, every step of the way.

Stay strong and breathe easy,

Stephanie Hueston

CWL Founder & President

CopingWithLM.org

Remember You Are Never Alone

"When you hear the noisy breathing, remember we heard that too, When your concerns fall upon deaf doctors ears, remember we felt that too, When you are told your Child has laryngomalacia, Remember you are never alone. We are in this struggle together. When you are scared because your child can't get their breath, We have been there too. The beeps hounding you from the monitors from the fragile baby you want to protect. We can cope if we all cope together. We can do this if they can do this. Can't we? The moment they tell you your baby needs surgery, That you must hand them over and trust them with something, someone so precious. The fear, You are not alone, we felt that too."-Malacia Mom Noami

#LuTheLamb Holiday Giveaway! (CLOSED)

Happy Holidays from everyone at 

Coping With Laryngomalacia, Inc.!

We are so excited to be offering a 

giveaway to our amazing families!

Gift bag includes:

 #LuTheLamb stuffed animal

 Medical alert car seat/stroller sign

10 brochures 

Sample pack of Gelmix Thickener

Handmade zipper pouch from SewLoved on Etsy

*over a $50 value!*

HOW TO ENTER:
THIS GIVEAWAY IS NOW CLOSED!

• Follow Coping With Laryngomalacia on Facebook

• Follow Gelmix Thickener on Facebook

• Follow SewLoved on Facebook

• Follow Tags 4 Tots on Facebook

•  Leave a review on the Coping With LM, Inc. GreatNonprofits.com page.

• Once all four tasks are completed, leave a comment on this blog post with your name and a valid Email address.

Rules:

One random winner will be selected and Emailed on 12/23/15.

This giveaway is valid worldwide.

Shipping is paid for by Coping With Laryngomalacia, Inc.

Coping With Laryngomalacia, Inc. is not responsible for International custom fees. 

This giveaway is not sponsored by SewLoved on Etsy.

This giveaway is not sponsored by Tags 4 Tots on Etsy.

This giveaway is not sponsored by Facebook or Instagram. 

This giveaway is not sponsored by GreatNonprofits.com

 

#GivingTuesday Is Here!

Today is ‪#‎GivingTuesday‬!
 

 Support Coping With Laryngomalacia, Inc. by shopping with Amazon Smile or by making a donation directly on our website:

http://www.copingwithlm.org/#!donate/ceas

thank you so much for your support!

Mark Your Calender, #GivingTuesday is 12/1/15!

Your $25.00 donation will send a care package to a laryngomalacia baby in ICU recovering from airway surgery, together we can make a difference!

DONATE NOW.

Jamberry Nails Online Fundraiser, happening now!

Each sheet of nail wraps gives you 2 manis and 2 pedis, plus leftovers.
Our current special is Buy 3, Get 1 FREE! (Regular price is $15 per sheet - licensed wraps are $17.50 and excluded from the special)

Shop NOW.

RSVP via Facebook. 

Fundraiser ends on November 28, 2015.

How Can I Help?

Coping With Laryngomalacia, Inc. is a registered 501 (c) 3 nonprofit organization that receives no government funding or grants. Coping With LM, Inc. is able to fulfill it's mission thanks to it's generous donors and volunteers who donate their precious time and talents, daily.

Q: How do I make a monetary donation online?
A: You may donate securely (here) on our website via PayPal.
      a $25 donation will send one care package to a baby in ICU recovering from airway surgery.

Q: Where do I send a donation by mail?
A: You can make all checks payable to:
Coping With LM, Inc.
PO Box 313 Port Monmouth, NJ 07758 USA

 
Q: Is my donation tax deductible? 
A: Yes! You will receive a receipt (for personal and tax purposes) and thank you card in the mail 7-10 days after your donation in received.

Q: I would like to donate to your Breathe Easy Care Package Program, what items are you in need of?
A: We are always in need of the following:

• handmade baby blankets
  - made from new fleece, soft yarn or cotton.
  -all colors and prints are accepted.
  -size 36in x 36in is preferred.
• handmade hats
  -made from new fleece, soft yarn or cotton.
  -size 3 months through 2T.
• handmade hospital gowns
  -made from new cotton.
  -all colors and prints are accepted.
  -sizes newborn through 2T.
• handmade (or store bought) baby lovies and rattles (small item for baby to hold/play with while in the hospital)
  -made from new soft yarn.
  -if store bought, item must still have tags on it.
  -all colors are accepted.
• reading books, coloring books, crayons and stickers (for children 2 years+ who are in the hospital)
  -items must be new and unused.
  -boy and girl colors/characters accepted. 
• go here for free patterns and ideas. 
• all donations can be mailed to: Coping With LM, Inc. PO Box 313 Port Monmouth, NJ 07758 USA

Q: I would like to volunteer my time and talents, who should I contact?
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about our current volunteer opportunities.

Q: Does Coping With LM, Inc. have any ongoing fundraisers? 
A: Current ongoing fundraisers include:

• Amazon Smile- .05% of each eligible purchase goes to Coping With LM, Inc.
• Bravelets- $10 from each bracelet purchased goes to Coping With LM, Inc.

Q: I would like to host a Malacia MeetUp, how do I begin?
A: Please contact Stephanie at CopingWithLM@yahoo.com to learn more about hosting a Malacia MeetUp near you.

Q: I am interested in learning more about fundraising for Coping With LM, Inc. Who should I contact?
A: Please contact Stormye at StormyeW@gmail.com to learn more about organizing a local event near you. Please contact Stephanie at CopingWithLM@yahoo.com to learn more about online fundraising (Etsy shop owners, Direct Sales Reps, ect.)  and New Jersey events.


Q: I/my child has been greatly supported and strengthen by Coping With LM, Inc. Where can I share my/our story?
A: We encourage all of our families, donors and volunteers to share their experiences and stories on our Great Nonprofits page, found here.

Q: Do you have an awareness day for airway defects?
A: Yes! #AirwayDefectsDay is July 10, 2016. We encourage all of our supporters to paint their nails light blue for laryngomalacia!