And the winner is...

The winner of our 2,000 Facebook Fan Giveaway is...

Lucky #6 Leah Abbadini!

Leah said:CWL has helped me to realize I know my baby better than any doctor ever will. I have truly learned so much from the page and everyone on it is always willing to help in any way. Thank you all so much!

Thank YOU, Leah!

We have sent you an Email on how to claim your prize.

LM: 3 Years Later

 Seraphina (3) with her little brother Max (10 months). 

Both were diagnosed with LM as infants.

Seraphina underwent surgery at four months old because her LM was so severe. 

Thankfully, both are thriving today :)

 It’s hard to believe it has been a little over three years since the word laryngomalacia  entered my vocabulary. Three years ago... my life was upside down. My nights consisted of waking up to an apnea monitor--alarming--telling me my infant was not breathing. My days were filled with doctors appointments, scopes, heart scans and moments of asking why did this happen to my baby? 
I remember holding my --gasping for air --baby while looking out the window... praying... please... please give me the strength to get through this.

Fast forward two years and laryngomalacia made it’s presence yet again with the birth of my third child, Max. I brought him to the ENT--knowing he had LM-- hoping the ENT would tell me my  motherly instinct was wrong.

I could sit here and tell you how hard it all was. How my heart literally ached, everyday. How scared I was. How I didn’t believe... it would ever get better. I could tell you all that... but you already know. You know because you are exactly where I was, three years ago... now my heart aches for you.

So I will tell you this... it does get better. 
You are not alone in this journey. 
CWL is here to help. Here to listen. Here to shed light in a journey of darkness.

My children are living proof that the good always follows the bad. Always.


Breathe Easy, 
Stephanie Hueston.
CWL Founder & President

(c) Coping With Laryngomalacia, Inc. 2010-2013

2,000 Supporters: GIVEAWAY!

Today is a huge milestone for CWL...

today we reached 2,000 supporters on our Facebook page. 

To celebrate we are giving away one of our 

Believe Bracelets (handcrafted by Loreley Jewelry ).

This bracelet offers encouragement and support for families coping with LM, TM and/or BM. 

Believe the good will follow the bad and it will. 

How to enter the giveaway: 

1. Like the Coping With Laryngomalacia on Facebook .

2. Like Loreley Jewelry on Facebook. 
3. Comment ON THIS BLOG POST
-your first & last name
-email address
-how CWL has helped you cope. 

A winner will be randomly chosen via Random.org and announced on March 15th. 
We will ship anywhere in the world.  

Good luck and thank you for your continued support!  
-The CWL Team
CopingWithLM@yahoo.com 

Norwex online Fundraiser

 

Join us for the month of March as LM Supermom Kristen 

donates 35% of all Norwex sales done through her website! 

Share with your friends & family! 

More info here.

The winner is...

As per Random.org the winner of the 

Itzbeen Pocket Nanny is....

Kelly JMarch 1, 2013 at 8:23 AM

Kelly Richardson
kadensmom10@yahoo.com
LM baby: Kameron age 1 month

Congrats Kelly & Kameron!

We have sent a confirmation Email to the provided  Email address.

 

Living In the Moment

One of my 2013 New Years Resolutions was to organize all my pictures.  I had a box of memory cards full of pictures and videos that I hadn’t done anything with. Shortly after the New Year began I sat down to tackle the project I had been putting off since June of 2010. You see, I stopped caring about pictures after Seraphina had her surgery. Up until then, I had documented--Martha Stewart Style--everything. Danny and I dating, moving into our apartment, pregnancies, births, first baths. It was all organized neatly...in chronological  order... on display in our bedroom for anyone who wished to see. Then Laryngomalacia was thrown into the mix and suddenly there was no time for monthly photo shoots on Nana’s handmade blanket or ink footprints every three months in the baby book.

Time went on and pictures were taken... not like they were though... these pictures were proof life was hard. They are were... for  a lack of a better word, sad.

As I uploaded the pictures my stomach began to sink. I missed it, I thought. Life ran through my fingers and I was too overwhelmed to even notice. Seraphina’s first steps, Christmas, Lilli’s first dance class. All moments that I knew were but now vaguely remember. Two and half years of our lives are now missing puzzle pieces in our life photo album.

Before the upload was complete, I stopped. I couldn’t do it anymore and frankly, I didn’t want too. Looking at those pictures brought me right back to it all. To a place that I have tried so very hard to forget. And then it hit me. Laryngomalacia or not ...this is life. If you blink too long, dwell on the negative... cry instead of laugh... you will miss it.

I missed Seraphina being a baby and it hurts, a lot.  I hope someday she can understand why her baby book isn’t complete. Why her memory box is full of hospital bracelets. But most importantly... why I am so dedicated with living in the moment, now.

My children will not always mispronounce the word hungry (I’m hungee Mommy!). That playroom I dread cleaning every night will soon be a teenage boy's room with a “knock before you enter” sign hung directly in sight. That rocking chair I have spent sooo many hours in will be collecting dust in our attic. Those fabulous princess dress up shoes will be traded in for prom heels.

Before I know it, I will be sitting alone in this house looking at pictures from those monthly photo shoots on Nana’s blanket, first steps, trips to the zoo... smiling on how blessed I was. The pictures of Seraphina’s surgery will fall out of the box...oh here they are, I will say.... good really does follow the bad, now doesn’t it?

Breathe Easy,
Stephanie Hueston
CWL Founder & President

(c) Coping With Laryngomalacia, Inc. 2010-2013

Itzbeen Pocket Nanny Giveaway!

Itzbeen Pocket Nanny

Itzbeen Pocket Nanny is a baby care timer that has a host of helpful features for new parents. Some of these features include a nursing reminder, soft-glow nightlight and timer alarm.

Want one?

Enter the giveaway!

Requirements & rules:

• Itzbeen Pocket Nanny must go to a baby with LM, TM and/or BM.
• The baby must live within the USA.
• The baby must be 3 months old or younger.
• Submissions will be only accepted through this blog.
• A winner will be randomly selected via Random.org
• Giveaway is open from February 21 to March 1, 2013.
• You may only enter once.
• One entry per family. 
• One Pocket Nanny will be given away, free of charge. 
• Pocket Nanny will be either: blue, green or pink in color (based on availability).

How to enter:

•  Comment to THIS POST with your name, email address, LM, TM/BM baby's name and age. 
• "Like" & "Share" Itzbeen on Facebook from your personal Facebook account. Tell them Coping With LM sent you.
•  If you are picked, we will Email you Friday night.

Good luck!